Epilepsy Talk

A Caregiver’s Guide to Survival…

February 25, 2022
2 Comments

It’s called “burn out.”

Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed.

Often you deal with the situation alone and feel very isolated. (My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.


The first new Alzheimer’s drug in 18 years may not work.

June 17, 2021
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Getting the FDA to retract a decision is like getting the toothpaste back in the tub, after it’s been squeezed out…

Whether it’s “yes” or “no,” there is no “maybe so”.

A good example is the new all-star Alzheimer’s drug aducanumab.


A Caregiver’s Guide to Survival…

September 18, 2019
15 Comments

It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.

You may have to give up your income and career prospects to care for someone.

Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. 

Often you deal with the situation alone and feel very isolated.

(My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself.

To be the best caregiver possible, you need to be physically and emotionally well, yourself.

After all, how effective can you be…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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