Epilepsy Talk

New hope for drug resistant epilepsy

May 26, 2022
12 Comments

Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy.

Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.

Unfortunately, traditional antiepileptic drugs (AEDs) don’t seem to prevent or reverse drug resistance in most patients.

However, some new add-on AED therapies have shown as much as 50% in seizure reduction.


Time out from Wednesday 5/18 – Sunday 5/22

May 18, 2022
4 Comments

Be well and please, take care of one another.


Is it a headache, an aura, a migraine, a seizure, or perhaps ALL four!

May 11, 2022
4 Comments

If you’ve had a migraine with auras that triggered an epileptic seizure, you might have experienced migraine-induced epilepsy.

Another name for this phenomenon is migralepsy.

Scientists have debated the existence and terminology of this phenomenon for some time.


Epilepsy & Migraines — Kissing Cousins

May 7, 2022
11 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.


Dilantin – What People Are Saying…

May 4, 2022
7 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.

I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)

But many have their own serious tales to tell. Here are some of their experiences. And some advice…


New Epilepsy Diagnosis – Now What?

April 29, 2022
3 Comments

You’re scared. Who wouldn’t be?

The docs. There are lots of terrific ones.

The tests. They can actually help to correctly diagnose your epilepsy.

I’ll die. Not very likely.

My life is over. No, it’s not, but it will change…


Posted in Epilepsy, Tips

Autopsies – Where Did They Go?

April 24, 2022
8 Comments

50 years ago, it was pretty easy to find out the cause of a loved one’s death.

Not so anymore.

An investigation published by ProPublica shows that hospital autopsies have become a rarity…


Gratitude is the Attitude

April 18, 2022
6 Comments

A wise woman once told me:

“When you wake up in the morning — before you get out of bed — think of 5 (or 10!) things that you’re really grateful for.”

(I think 10 is a bit of a stretch.)

That simple advice, changed my attitude. And my life.


Who was your greatest inspiration?

April 14, 2022
7 Comments

For me, quite simply, it was my grandfather.

After all, I was a pariah. A leper. (No one would say the “E” word.)

I’d never achieve anything. My life was over.

Even though it had just begun.


Cannabis for Better Sex? Here’s What the Science Says.

April 2, 2022
5 Comments

Both men and women have long reported that cannabis alters their sexual experience.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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