Epilepsy Talk

Stevens-Johnson Syndrome — a danger for those on Dilantin or Lamictal

March 10, 2017
18 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


Dilantin – What People Are Saying…

June 24, 2013
135 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited. Phenobarbital or Dilantin. Pick your poison.

I chose Dilantin. It was not a pretty picture.

I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)

But many have their own serious tales to tell. Here are their experiences. And some advice…


Dilantin – Hero or Horror?

October 6, 2010
404 Comments

Dilantin (Phenytoin) can be considered the grandfather of all epilepsy medications. Although it was invented in 1908 as a chemical that could prevent convulsions during electroshock treatment, its popularity grew quickly, and as early as 1940, it was hailed as initiating a whole new epoch of anti-epilepsy drugs, motivating researchers to seek even more effective medications and pharmaceutical companies set up aggressive screening programs.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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