Epilepsy Talk

Stevens-Johnson Syndrome — A Danger For Those On Dilantin Or Lamictal

July 18, 2022
7 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


Dilantin – What People Are Saying…

May 4, 2022
7 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.

I was a walking zombie, constantly keeling over, and the final insult was when I went into a coma because of toxic blood levels. (No brain, no pain?)

But many have their own serious tales to tell. Here are some of their experiences. And some advice…


Dilantin – Hero or Horror?

May 1, 2022
28 Comments

Since it first came out, Dilantin has always had its fans and its detractors.

Who can forget Jack Nicholson’s out-of-control behavior as the “crazy” in Ken Kesey’s “One Flew Over the Cuckoo’s Nest”!


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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