Epilepsy Talk

Food or medications — which would you choose? | May 1, 2023

It’s heartbreaking, but all too common…

A patient calls their doctor after repeated seizures.

He had missed his medication for about a week. He had recently been laid off and lost insurance coverage.

He couldn’t afford to refill his eslicarbazepine acetate (Aptiom) prescription. 

How does this happen? Why?

Find out in this compelling article: https://www.medpagetoday.com/opinion/second-opinions/104149?xid=nl_secondopinion_2023-04-25&eun=g678261d0r

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  1. Reblogged this on Disablities & Mental Health Issues.


    Comment by Kenneth — May 1, 2023 @ 11:58 AM

  2. I am lucky to have people in my life that know seizures could take my like. I may not see family often but they would pay until I got new insurance. For that I am thankful.

    Liked by 1 person

    Comment by Bonnie — May 1, 2023 @ 2:57 PM

  3. APTIOM is still patent protected and as a result costs well over $1,100 month. New patients can often get manufacturer’s coupons to drastically reduce the price initially but sooner or later, they will have to pay full price. But let’s be frank there are many alternative drugs available as generics, which are much less expensive. For example generic phenytoin can be as low as $25 a month. It would be a rare (but not unknown) case, when a patient can only be controlled by only one specific drug and no alternatives are available.
    Did the patient inform the doctor that they were unemployed and couldn’t afford APTIOM? If so l, surely the doctor would have recommended an alternative? Of course some doctors are offered incentives to recommend new drugs and report back on Patient experience. I hope this was not such a case.

    Liked by 1 person

    Comment by Michael H — May 1, 2023 @ 4:12 PM

  4. Michael, I think this was an example of a recurring experience. But I hear you. And what you’re saying makes sense.


    Comment by Phylis Feiner Johnson — May 1, 2023 @ 4:42 PM

  5. Well here in CA they have social services that if you make below the poverty rate you can get free medical and groceries and if needed, money.

    So there are agency that will help.

    Liked by 1 person

    Comment by zolt — May 2, 2023 @ 10:13 PM

  6. I choose my meds.
    But I also have family that would help if needed. I have needed help before and they pulled through like champs. They have told me anytime let us know. I am truly blessed.

    Liked by 1 person

    Comment by Bonnie — May 16, 2023 @ 6:08 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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