Epilepsy Talk

Weird epilepsy triggers…

March 28, 2023
13 Comments

Here’s a list of uncommon epilepsy triggers you may have experienced or know about.

Feel free to add to this list of the weird and the unknown…


Common epilepsy triggers…

March 27, 2023
7 Comments

Epilepsy affects each person differently. Below is a guide to some common seizure triggers. You may not feel or notice anything in particular. Or you may have triggers which are not mentioned here. Keeping a seizure diary is the most effective way of keeping track of what triggers your seizures.


A menu of epilepsy auras… 

March 23, 2023
10 Comments

One of the good thing about auras, is that if you’re aware of them, they’re effective (if unpleasant) warning signals of an oncoming seizure.

I didn’t learn to identify mine (mouth filling up with saliva and disgusting metallic taste) until I was well into my 20’s.


Seniors — Alzheimer’s, Epilepsy or Seizures?

March 13, 2023
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The question of whether a person has epilepsy or Alzheimer’s can be a tough one.

Take those “senior moments” — memory lapses, zoning out and other temporary confusion. These seemingly harmless incidents may actually be a sign of epilepsy. Roughly 1-2 percent of seniors develop epilepsy — and that rate is rising.

But experts at the U.S. National Council on Aging warn that often epilepsy goes undetected in seniors.


How to stay forever young… 

March 2, 2023
3 Comments

Here are some inspired ideas by George Carlin on how to stay young. I think they’re brilliant. Now if we could all manage to do this, maybe we would live a little longer!


Posted in Epilepsy, Tips
Tags: , , ,

12 sleep tricks…

February 27, 2023
6 Comments

We all know that sleep deprivation can trigger seizures.

Some people’s seizures are tied very closely with their sleep. You may have all of your seizures while sleeping, when falling asleep or waking up.

Lot of things can affect your sleep and make you more likely to have seizures. Here are a few factors to consider:


Damaged goods

February 23, 2023
11 Comments

There’s something liberating in being expected to fail. No expectations, no explanations.

After all, “you’ll never amount to anything.” You’re damaged goods.

So you’re free to fall on your face. Or reach for the stars. I did both.


The Trouble with AEDs… 

February 19, 2023
4 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much to ask?


Other Voices…Other Lives…

February 16, 2023
6 Comments

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”

Ed L.


People talk about their out-of-body experiences…

February 5, 2023
2 Comments

“My back was on the ceiling and I was looking at my body laying there, and it was very freaky. While out-of-body I was just staring at my nose and freaking out a little but something told me you are gonna be alright.”


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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