Epilepsy Talk

The perils of discontinuing your epilepsy meds…

June 13, 2025
4 Comments

One of the most common questions is “when can I stop taking my meds?”

Especially for those whose seizures have been under good control.

It makes sense. Because if you’re doing well, you start to wonder: “Why do I need these meds anymore”?


Epilepsy Without Vaccinations — The Risks

April 1, 2025
5 Comments

I started this article assured that vaccinations of children with epilepsy was a definite no-no.

And boy, was I surprised.


A chief of surgery offers insider tips to finding the right surgeon 

June 24, 2023
1 Comment

On Sunday morning, my neighbor Carolyn knocked on my front door holding a basket of carbs and said, “I need to have my gallbladder out. I’ve never had an operation and have no idea how to find a surgeon to do my surgery. I don’t want to die. I brought you some scones.”

Carolyn brings up a valid point — if you’ve been blessed with reasonably good health, you probably don’t have a surgeon’s number on speed dial. Therefore, the bigger question is, in the unfortunate event that you need one, how do you find the best surgeon for your medical condition?


Before you agree to surgery… 

May 18, 2023
16 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


Brain Surgery — Questions to Prepare Yourself

April 11, 2023
6 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


Combined Meds — What They Are Doing to Your Body

January 27, 2023
7 Comments

For many of us, monotherapy just doesn’t work.

However adjunct therapy has its dangers.

For example, some seizure medicines can lower or raise the levels of other types of medicines in your blood.

Some combinations cause the levels of both medications to fall.

Some cause one level to fall and one level to rise.

And some cause unpredictable side-effects.

So I hunkered down to discover the unhappy marriages between anti-seizure meds.


Seizures and Steroids – A Hidden Solution 

August 27, 2022
9 Comments

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance.

Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.


Calcium – Friend or Foe?

July 1, 2022
14 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking anti-epilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!


Dilantin – Hero or Horror?

May 1, 2022
28 Comments

Since it first came out, Dilantin has always had its fans and its detractors.

Who can forget Jack Nicholson’s out-of-control behavior as the “crazy” in Ken Kesey’s “One Flew Over the Cuckoo’s Nest”!


Epilepsy: Meditation vs. Medication

August 3, 2021
2 Comments

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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