Epilepsy Talk

28 New Epilepsy Medicines In Development

July 18, 2017
21 Comments

A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


24/7 Epilepsy Foundation Helpline

July 5, 2017
21 Comments

Do you have questions about seizures or epilepsy?

The Epilepsy Foundation’s Helpline is now available 24 hours a day, 7 days a week.

Trained information specialists are now standing by to answer your questions about epilepsy and seizures.


Pregnancy with Epilepsy — Medication Dangers

July 1, 2017
4 Comments

According to the Epilepsy Foundation, mothers taking seizure medication, risk birth defects of 4 to 8 percent — compared with 2 to 3 percent for all babies. Not much of a difference.

But the risk seems to be highest when multiple seizure medications are taken. Yet, without medication, uncontrolled seizures may deprive the baby of oxygen. Seizures can also increase the risk of miscarriage or stillbirth.

So, it’s important, as you know, to get the right balance.


Colds, Flu and You…

June 4, 2017
28 Comments

With all the colds and flu going around, it’s not easy to figure out which medications which are safe to take.

Obviously, the best way to manage medication interactions is to avoid medications that are known to cause problems.

A few medicines that you pick up off the shelf at the drug store can potentially increase the frequency of seizures in people with epilepsy, or even cause first-time seizures.


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
4 Comments

It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


Embrace — A Seizure Smartwatch With Style

April 6, 2017
30 Comments

Embrace makes it very easy to monitor physiological stress, sleep and physical activity.

You can check your entire day in a glance in a way that is easy to understand.

If you push yourself too much, the Embrace will gently remind you with a vibration that you need some time to recover. You can customize it to suit your behavior and needs.


I Just Had To Share This…

March 26, 2017
8 Comments

No, this is not an advertisement. Nor is it an endorsement.

But I just read this article about Direct Primary Care by Lydia Ramsey, reporter for the Business Insider’s Science Section and thought you should know about it. Because it’s a real break-through in medical care.

Especially in reference to your choice of a Personal Care Physician.

Perhaps “Direct Primary Care” sounds too general and is not specific enough for those of us who have epilepsy. But for those who have “healthy” family members, it sounds like a real “find”.


Clinical Tests and Trials — Hope for Tomorrow

January 28, 2017
6 Comments

I have a friend who’s tried virtually everything. Surgeries, all the appropriate meds on the market. You name it — she’s been there.

Now she’s enrolling in a program that will hopefully help her, as well as many others.


Clinical Trials — International Database

January 28, 2017
6 Comments

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


Happy New Year!

January 1, 2017
12 Comments

New year’s blessings to all my Epilepsy Talk friends.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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