Epilepsy Talk

Epilepsy Foundation Was Targeted in Mass Strobe Cyberattack | December 17, 2019

Hackers sent videos and images of flashing strobe lights to thousands of Twitter followers of the Epilepsy Foundation last month in a mass cyberattack that apparently sought to trigger seizures in those with epilepsy, the foundation said on Monday.

The series of online attacks was particularly reprehensible, it said in a statement, because it took place during National Epilepsy Awareness Month.

For more information, see:


  1. It occurred in November and it is only now reported? I do not understand why anyone would want to inflict harm on any group of people let alone epileptics.

    And of course you can buy high intensity strobe lights for so called self defense. Self defense against epileptics?

    Incidentally the link required me to have a subscription to the NYT but the following link does not.



    Liked by 1 person

    Comment by Michael H — December 17, 2019 @ 12:19 PM

    • Great. Thanks for the link, Michael. It reports exactly what the NYT says, just in a more accessible manner.

      Sorry to post an article you needed a subscription to!

      And yes, where ever you read it, the information is cruel. But as you say? Why now? AFTER the fact?


      Comment by Phylis Feiner Johnson — December 17, 2019 @ 12:32 PM

  2. I tried to find an old link to it but couldn’t, but some years back the Epilepsy Society in the UK had a forum board attached to it and it got hacked/spammed with innocent looking links that opened to strobes. From what I remember there was at least one person affected. So this isn’t a new thing. Some people are just seriously horrible.

    Liked by 1 person

    Comment by Katie — December 17, 2019 @ 1:17 PM

  3. I’m sure of both. But it doesn’t often get publicized.

    Does anybody care? Makes you wonder, doesn’t it?


    Comment by Phylis Feiner Johnson — December 17, 2019 @ 1:27 PM

  4. In todays world we need to be extra careful and safe. Hackers and Bully’s and destroyers are all over. Shoot to kill, Strobe lite epilepsy sites, attack synogogues, beat up fraternity people who don’t agree with your lifestyle. etc. Hard to get along in this world. shoot people on the bridge in London. Kill a student in central park. All the same…should lock up the perps and through away the key until they learn how to belong to our society. Not so bad. work, make a living, have friends, travel. save, retire to Arizona or wherever, and protect and enjoy your family even with Epilepsy.

    Liked by 1 person

    Comment by Joel Mason — December 17, 2019 @ 2:11 PM

    • A good and noble goal, Joel.

      But these people do exist and must be dealt with in some way.

      Throw away the key?

      The question is HOW?


      Comment by Phylis Feiner Johnson — December 17, 2019 @ 2:26 PM

  5. The expression WTF has gotten massively overused lately but this is a genuine WTF moment. What goes on in someone’s mind who would do such a thing?

    Liked by 1 person

    Comment by paleobird — December 17, 2019 @ 3:12 PM

  6. Thankfully I didn’t receive one. But why? Why would anyone do such a thing?!

    Liked by 1 person

    Comment by Michelle's Musings — December 17, 2019 @ 6:07 PM

  7. Well, I hope they are charged, and not just with hacking. Assault with intent to harm would be a start, and for each person affected.
    What kind of person would do such a thing?

    Liked by 2 people

    Comment by Marlyn — December 17, 2019 @ 10:53 PM

  8. I hope they get prison

    Liked by 1 person

    Comment by Terry & Judy Fields — December 17, 2019 @ 11:37 PM

  9. There are ways to find the perpetrators, just by the ip address they can find what provider gives out that ip and go after them. More than likely it’s low on the radar for criminal activity. None the less these are your lowest of low types, the type that will kick u when u r already down. These people need there necks squeezed until there eye pop out. Sorry, but that is the way i feel.

    Liked by 1 person

    Comment by Zolt — December 18, 2019 @ 11:53 AM

    • Thanks for the tip, Zolt.

      And yes, it would be generous punishment to have their necks squeezed, until their eyes pop out!

      How about a little status epilepticus?


      Comment by Phylis Feiner Johnson — December 18, 2019 @ 1:43 PM

  10. I am having trouble believing people are so cruel.

    Liked by 1 person

    Comment by Flower Roberts — December 19, 2019 @ 3:25 PM

    • But they are now days but never know who, The world nowdays is big difference from in the 50 and 60 and 70’s Now days people will drop something in your glass if not watching, I’m thankful born in the 50″s

      Liked by 1 person

      Comment by Terry & Judy Fields — December 19, 2019 @ 9:53 PM

  11. I was born in 1951 were it was more safer and trust and people cared and I am so thankful for that to

    Liked by 1 person

    Comment by Terry & Judy Fields — December 19, 2019 @ 10:32 PM

  12. Safer in the old days? Well now, that depends…..I was born in the 1940’s in the East End of London and German bombs were dropping! We did not have strobe lights but we had anti aircraft guns booming, Anderson shelters and gas masks! The only anti epileptic drugs were Phenytoin and Phenobarbital and neurology was in its infancy. I confess that I for one do not miss “the the good old days!”

    Liked by 1 person

    Comment by Michael H — December 20, 2019 @ 2:15 AM

    • Well, your “good old days” sound far from “safe”. In fact they sound like a living nightmare.

      Phenytoin and Phenobarbital were also the only meds available in the 50s and 60s.

      It was a matter of pick your poison.


      Comment by Phylis Feiner Johnson — December 20, 2019 @ 9:35 AM

  13. I understand that in Britain there are already laws in the works to criminalize this kind of behavior. We can only hope other countries will follow suit.

    Liked by 1 person

    Comment by HoDo — December 23, 2019 @ 11:22 AM

  14. I consider this a hate crime.

    Liked by 1 person

    Comment by Hector J Santos — January 8, 2020 @ 7:30 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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