Epilepsy Talk

Clinical Trials — International Database | January 28, 2017

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 235,391 studies with locations in all 50 states and in 195 countries. Studies are easy to search for by topic and location.

For example, if you search “Epilepsy Philadelphia,” you can find places that are recruiting, active, and completed with results. And for those studies that are completed with results, you can download the outcome of the study.

Trials may be for medical products such as drugs or devices, procedures, or changes to participants’ behavior: for example, diet. Clinical trials may also compare a new medical approach to a standard one that is already available.

 

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6 Comments »

  1. Keep up the good work it’s needed epilepsy is a terrible illness for all family members. We have to keep progressing and get a cure. God Bless all involved

    Like

    Comment by Thomas Langella — January 28, 2017 @ 11:53 AM

  2. I agree Thomas. They are dedicated and striving in an effort towards a better world for us and others.

    Like

    Comment by Phylis Feiner Johnson — January 28, 2017 @ 12:03 PM

  3. Hi to all .
    I am epileptic person, I was taking my epilepsy drugs and temazepam to sleep better, but after two year or so, I said this is enough, I don’t want it anymore, because it was giving m headache, nausea , sleepy every morning luys I was of sleeping well every night, I used to wake up every day night at 2:30 a.m. And then I couldn’t sleep well . So I started my researches how temazepam works in your brain, I find out somestused related wth melatonin, I said I am going to try it, I stopped the temazepam, I am taking melatonin, sleeping better I wake up every day between 5:00 and 6:00 a.m. My doctor kno about it, I want to increase to to 5 mg for every night, (since I am taking 3 mg now )
    I am happy, less headache in the morning, and one more thing I forgot to mention, with temazepam, I was having hard time to talk, bring and put words even thou I knew them but I wasn’t able to say them .
    I will continue MELATONIN, it is working for me, and as we all know it is more natural.

    Like

    Comment by A k — February 7, 2017 @ 9:08 AM

  4. A K, I think you’ll be interested in this article:

    Epilepsy and Melatonin – Yes? No? Or Maybe So?

    https://epilepsytalk.com/2012/11/19/epilepsy-and-melatonin-yes-no-or-maybe-so/

    Like

    Comment by Phylis Feiner Johnson — February 7, 2017 @ 10:51 AM

  5. Hello developed seizures about 7 months ago I’m 55 year old woman the seizures I had were nocturnal so far….I’m currently taking keppra seems to be working don’t like the side effects of any of the meds…wondering about latest research on medical marijuana…and also if there is a connection between sleep apnea and seizures…doctors don’t like to talk about those things they just like to give you the pharmaceuticals…tired of side effects

    Like

    Comment by Jody Zimmer — March 14, 2017 @ 10:58 AM

  6. Jody, Here’s something about sleep apnea:

    Epilepsy And Sleep Apnea — A Dangerous Duo

    https://epilepsytalk.com/2013/06/10/epilepsy-and-sleep-apnea-a-dangerous-duo/

    As for marijuana, here’s some good articles:

    Cannabis use in people with epilepsy revealed: Australian survey

    https://www.sciencedaily.com/releases/2017/03/170309120525.htm

    The study showed that of those with a history of cannabis product use, 90 per cent of adults and 71 per cent of parents of children with epilepsy reported success in managing seizures after commencing using cannabis products.

    Recent Research on Medical Marijuana

    http://norml.org/library/item/epilepsy

    Media reports regarding the successful use of CBD by pediatric patients are widespread. Parents of children with severe epilepsy have also reported successful experiences with cannabidiol-enriched cannabis in scientific surveys.

    7 Scientific Effects of Marijuana That Experts Want to Study

    http://time.com/4448757/7-scientific-effects-of-marijuana-that-experts-want-to-study/

    Good luck. Hope this information helps.

    Like

    Comment by Phylis Feiner Johnson — March 14, 2017 @ 12:21 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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