Epilepsy Talk

Even Beginners Can Curb Pain With Meditation

December 6, 2021
1 Comment

Meditation has long been touted as a holistic approach to pain relief. And studies show that long-time meditators can tolerate quite a bit of pain.

Now researchers at Wake Forest Baptist Medical Center have found you don’t have to be a lifelong Buddhist monk to pull it off. Novices were able to tame pain after just a few training sessions.


Stop the FDA from regulating supplements and nutrients

December 3, 2021
8 Comments

The Dietary Supplement Labeling Act pretends to be consumer-oriented, but instead will give the FDA redundant power that it could easily misuse, restricting your access to nutritional supplements and raising the cost of buying them.

In short, nutritional supplements will be regulated like prescription drugs…


Explaining Epilepsy to a Friend… 

November 26, 2021
13 Comments

Explaining epilepsy to a friend is no easy matter. Sometimes they may be scared. Some may be curious. Some may want to help. Some may want to flee.

But, obviously, those who care will want to understand you. For those friends, here are some brief epilepsy facts:


Let us be thankful…

November 22, 2021
10 Comments

In 5 minutes you can help feed the hungry around the world, provide free mammograms, contribute to research for autism, help our returning veterans, donate books for needy kids, help save the rainforest and those unfortunate animals in shelters.

And all of it is FREE!


The Mystery of Epilepsy and Celiac Disease

November 4, 2021
14 Comments

The relationship between celiac disease and epilepsy has been documented in medical journals for decades. Yet neurologists rarely consider it as an underlying possibility in cases of idiopathic epilepsy.

It never ceases to amaze me what an impact celiac disease can have on one’s life and quality of life, but there is no routine testing for it. Yet, I‘ve been told (and have read) that very few people with epilepsy are told of the possibility of celiac disease!


Purple Is The Color Of… 

November 2, 2021
8 Comments

In honor of Epilepsy Awareness Month, I’ve started a list of “all things purple”.


$56,000 a year for an unproven drug!

October 30, 2021
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Getting the FDA to retract a decision, is like getting the toothpaste back in the tube, after it’s been squeezed out…

Whether it’s “yes” or “no,” there is no “maybe so”.

A good example is the new all star Alzheimer’s drug aducanumab.

Whether it’s “yes” or “no,” there is no “maybe so”.


A ‘Pacemaker’ for the Brain…Reducing Seizures by as Much as 50%…and Depression up to 30%

October 7, 2021
3 Comments

Some people know Deep Brain Stimulation (DBS) as a treatment for epilepsy, reducing seizures by as much as 50 percent.

It’s designed for the considerable number of patients suffering from medically refractory epilepsy who are not candidates for for resective brain surgery.

This tiny pacemaker-like device, is implanted in the brain to deliver a small amount of electricity when it detects the onset of a seizure.

But, what most people DON’T know know is that Deep Brain Stimulation, can help depression by up to 30 per cent.


What Is the FDA Thinking?

October 2, 2021
3 Comments

Getting the FDA to retract a decision is like getting the toothpaste back into the tube, once it’s been squeezed out.

Take the current all-star Alzheimer’s drug aducanumab. It’s not a proven but it IS approved. To the hefty price tag of $56,000 a year!


Vagus Nerve Stimulation…Is it for YOU?

September 12, 2021
12 Comments

Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?

I did some research and got the low-down on what it is, how it works and some interesting statistics.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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