Epilepsy Talk

NEW migraine relief!

August 19, 2022
10 Comments

“Migraines are debilitating, and they can be quite difficult to treat. But patients shouldn’t lose hope,” Dr. Ozudogru said.

When she sees a new patient with migraines, she reassures them: “I’m not going to give up,” she says.

“We’ll keep trying.”

And today, there are more treatment options than ever to choose from…


Breathing your stress away…

August 8, 2022
2 Comments

A little while ago, when I went to my doc, I told him I felt like I was jumping out of my skin. I’m already maxed out on meds, so he suggested breathing exercises as a complimentary addition to my regimen.

I’ve started them and already, I feel better!


Can you get seizures after vaping?

August 3, 2022
6 Comments

Reports of people who have seizures after vaping have raised serious questions about the safety of electronic cigarettes, which have grown in popularity in recent years.


Posted in Epilepsy, News
Tags: , ,

Where’s the funding? Epilepsy as an orphan.

August 2, 2022
5 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 150,000 new cases of epilepsy diagnosed each year, and a total of more than 3.4 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Why won’t you play with me?

July 28, 2022
5 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.


Time Out — Friday 7/22 through Monday 7/25

July 21, 2022
8 Comments

I’m going to the Big Apple for some fun and adventure. And even a whale watch!

Take care of yourselves and each other.

I’ll be thinking of you. And see you on Tuesday 7/26.


Posted in Epilepsy

Stevens-Johnson Syndrome — A Danger For Those On Dilantin Or Lamictal

July 18, 2022
9 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


TNS vs. VNS — NO SURGERY!

July 11, 2022
12 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.

Especially if the VNS treatment has proven ineffective.

And of course, what goes in, must come out.

Anyway you look at it, there’s more surgery involved.


Which type of doctor is best for you?

July 9, 2022
3 Comments

We all know that epilepsy is not a one-type-fits-all condition. Nor are the answers to seizure control. But there are plenty of options out there. Here are just a few…


What’s really in your meds?

July 5, 2022
1 Comment

As Americans become more concerned about quality issues with prescription medications made abroad, one company is trying to offer an additional layer of reassurance — by doing chemical analysis before dispensing drugs to patients.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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