Epilepsy Talk

Science Daily: Glucosamine dampens the brain hyperexcitability seen in seizures or epilepsy

March 15, 2018
18 Comments

Researchers have found that inducing a biochemical alteration in brain proteins via the dietary supplement glucosamine was able to rapidly dampen that pathological hyperexcitability in rat and mouse models.

These results represent a potentially novel therapeutic target for the treatment of seizure disorders, and they show the need to better understand the physiology underlying these neural and brain circuit changes.

Seizure disorders — including epilepsy — are associated with pathological hyperexcitability in brain neurons.


SeizAlarm — Apple’s New Seizure Detector — Help is Always Just a Button Press Away

February 10, 2018
13 Comments

Greg Pabst and his neurologist were trying to get a handle on his adult onset epilepsy when the doctor’s mention of the newly announced Apple Watch gave Pabst an “ah-hah” moment.

The doctor was discussing tools for Pabst to chart his seizures and send alerts to emergency contacts.

“Then he said, ‘It’s only a matter of time before somebody does that for the Apple Watch,’ ” Pabst, 38, recalled.

“Then I thought maybe it should be me.”


28 New Epilepsy Medicines In Development

July 18, 2017
21 Comments

A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


Embrace — A Seizure Smartwatch With Style

April 6, 2017
30 Comments

Embrace makes it very easy to monitor physiological stress, sleep and physical activity.

You can check your entire day in a glance in a way that is easy to understand.

If you push yourself too much, the Embrace will gently remind you with a vibration that you need some time to recover. You can customize it to suit your behavior and needs.


I Just Had To Share This…

March 26, 2017
8 Comments

No, this is not an advertisement. Nor is it an endorsement.

But I just read this article about Direct Primary Care by Lydia Ramsey, reporter for the Business Insider’s Science Section and thought you should know about it. Because it’s a real break-through in medical care.

Especially in reference to your choice of a Personal Care Physician.

Perhaps “Direct Primary Care” sounds too general and is not specific enough for those of us who have epilepsy. But for those who have “healthy” family members, it sounds like a real “find”.


Clinical Trials — International Database

January 28, 2017
6 Comments

There’s a whole treasure trove of clinical trials information now available as a free service of the National Institutes of Health, developed by the National Library of Medicine (NLM).

ClinicalTrials.gov is a web-based resource that provides patients, family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

Presently, there are 131,167 studies with locations in 179 countries, including the U.S. Studies are easy to search for by topic and location.


Keppra – A New Breakthrough

March 13, 2016
14 Comments

Recently, the FDA approved the very first 3D-printed medication.

3D printing has taken the world by storm, and although it may sound like science fiction, it’s here to stay.

And the pharmaceutical industry is getting in on this innovative technology.


Epilepsy Advocacy Letter

November 3, 2015
8 Comments

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.


Epilepsy Abuse and Civil Rights

November 3, 2015
4 Comments

The following letter was written to local Legislators, Health & Human Service Agencies, The Office for Civil Rights and selected members of the President’s Cabinet…

Dear President Obama:

Re: Epilepsy Abuse and Civil Rights


For Sleep Apnea — Three Revolutionary New Types of CPAP

November 8, 2014
2 Comments

These days, there’s an endless variety of CPAP options. But, since purchasing a new CPAP can be a big investment and expense, you want to pick the best you can. And the most comfortable and efficient.

Here are three of the newest, most revolutionary, and top-performing CPAPs on the market.

With one of these on your nightstand, sleeping just got easier.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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