Epilepsy Talk

Prevent medication changes…

December 3, 2022
6 Comments

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor.

You might want to make a copy of it for your files.


Mail-Order Meds — Savings and Service

November 20, 2022
6 Comments

For some people, accessing the pharmacy remains one of the biggest barriers to retrieving prescriptions.

A lack of social support, time constraints and limited access to convenient transportation are commonly cited as reasons users cannot get their medication, according to the Centers for Disease Control and Prevention.

But it’s not just patients who have difficulty getting to the pharmacy who benefit from mail-order pharmacies: These programs offer flexibility, time and cost-savings to all enrolled.


Concussion diagnosis in 15 minutes?

November 12, 2022
3 Comments

Can a video game detect a concussion?

Not exactly. But a computerized test, similar to a video game can do just that!


Sleep apnea — it’s not just what you think it is

September 11, 2022
8 Comments

It’s not just snoring. It’s much more dangerous than that. Even deadly.

The estimated prevalence in North America is approximately 15 to 30 percent in males and 10 to 15 percent in females, But, as much as 40 percent of epilepsy patients suffer with undiagnosed sleep apnea. Especially those with refractory epilepsy.


Anti-epilepsy drugs and osteoporosis — it’s not just a woman’s disease

August 31, 2022
8 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


Seizures and Steroids – A Hidden Solution 

August 27, 2022
9 Comments

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance.

Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.


NEW migraine relief!

August 19, 2022
10 Comments

“Migraines are debilitating, and they can be quite difficult to treat. But patients shouldn’t lose hope,” Dr. Ozudogru said.

When she sees a new patient with migraines, she reassures them: “I’m not going to give up,” she says.

“We’ll keep trying.”

And today, there are more treatment options than ever to choose from…


Stevens-Johnson Syndrome — A Danger For Those On Dilantin Or Lamictal

July 18, 2022
9 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


TNS vs. VNS — NO SURGERY!

July 11, 2022
12 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.

Especially if the VNS treatment has proven ineffective.

And of course, what goes in, must come out.

Anyway you look at it, there’s more surgery involved.


What’s really in your meds?

July 5, 2022
1 Comment

As Americans become more concerned about quality issues with prescription medications made abroad, one company is trying to offer an additional layer of reassurance — by doing chemical analysis before dispensing drugs to patients.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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