Epilepsy Talk

Anti-epilepsy drugs and osteoporosis — it’s not just a woman’s disease

August 31, 2022
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A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


Seizures and Steroids – A Hidden Solution 

August 27, 2022
9 Comments

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance.

Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.


NEW migraine relief!

August 19, 2022
10 Comments

“Migraines are debilitating, and they can be quite difficult to treat. But patients shouldn’t lose hope,” Dr. Ozudogru said.

When she sees a new patient with migraines, she reassures them: “I’m not going to give up,” she says.

“We’ll keep trying.”

And today, there are more treatment options than ever to choose from…


Stevens-Johnson Syndrome — A Danger For Those On Dilantin Or Lamictal

July 18, 2022
9 Comments

This article is not for those with a weak stomach. Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.


TNS vs. VNS — NO SURGERY!

July 11, 2022
12 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.

Especially if the VNS treatment has proven ineffective.

And of course, what goes in, must come out.

Anyway you look at it, there’s more surgery involved.


What’s really in your meds?

July 5, 2022
1 Comment

As Americans become more concerned about quality issues with prescription medications made abroad, one company is trying to offer an additional layer of reassurance — by doing chemical analysis before dispensing drugs to patients.


Calcium – Friend or Foe?

July 1, 2022
14 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking anti-epilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!


Xcopri provides long-term seizure control in patients with focal epilepsy

June 26, 2022
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Long-term use of Xcopri was safe and reduced seizures by more than 90% in adults with uncontrolled focal seizures, according to results of an open-label extension study published in Neurology.


MSG: Dangerous or Deadly?

June 26, 2022
1 Comment

MSG can be responsible for long term neurological damage.

It’s been linked to diabetes, stroke, epilepsy, multiple sclerosis, stomach disorders, fatigue, depression, headaches and migraines, grand mal seizures, irregular or rapid heartbeat, nausea and vomiting, numbness in the fingertips, autism, ADHD, asthma-like symptoms, fibromyalgia type pain, disorientation and confusion, and degenerative disorders such as Parkinson’s and Alzheimer’s.


Brand-Name Epilepsy Drug Prices Jumped 277% Over 11-Year Period

June 17, 2022
8 Comments

“Compared with 2008, costs for brand-name anti seizure meds (ASMs), rose from approximately $2,800 to $10,700 per year in 2018, while costs for generic brand ASMs dropped $800 to $460. As a result, many generic ASMs cost about 10 times less than their brand-name counterparts…”


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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