Epilepsy Talk

Salba — The Super Food

March 21, 2018
30 Comments

You probably already know a lot about all the benefits of Omega-3 fatty acids. About how they are crucial to the proper development and function of cell membranes in the brain.

And how, according to researchers at Emory University, one particular fatty acid – DHA — is found to be at critically low levels in patients with uncontrolled epilepsy. Which is why doctors recommend diets rich in Omega-3.

However, there’s a new nutrient that’s BIGGER and better…


Science Daily: Glucosamine dampens the brain hyperexcitability seen in seizures or epilepsy

March 15, 2018
18 Comments

Researchers have found that inducing a biochemical alteration in brain proteins via the dietary supplement glucosamine was able to rapidly dampen that pathological hyperexcitability in rat and mouse models.

These results represent a potentially novel therapeutic target for the treatment of seizure disorders, and they show the need to better understand the physiology underlying these neural and brain circuit changes.

Seizure disorders — including epilepsy — are associated with pathological hyperexcitability in brain neurons.


SeizAlarm — Apple’s New Seizure Detector — Help is Always Just a Button Press Away

February 10, 2018
13 Comments

Greg Pabst and his neurologist were trying to get a handle on his adult onset epilepsy when the doctor’s mention of the newly announced Apple Watch gave Pabst an “ah-hah” moment.

The doctor was discussing tools for Pabst to chart his seizures and send alerts to emergency contacts.

“Then he said, ‘It’s only a matter of time before somebody does that for the Apple Watch,’ ” Pabst, 38, recalled.

“Then I thought maybe it should be me.”


Help Line

September 25, 2017
5 Comments

The secret here is the numbers 211.

Go to the website: http://www.211.org/. Where available, 211 allows people to give help and to get help.

211 can also give people who live in rural areas better access to health and human service information.


Posted in Epilepsy, Tips

Rewiring the Brain with Cell Transplantation

August 9, 2017
5 Comments

Cell transplantation is an emerging approach for treating drug resistant epilepsy.

Regenerative medicine such as this, is a relatively “simple” process in that stem cells are often cultured from the patient’s own tissue, then processed and transfused back into the body.


28 New Epilepsy Medicines In Development

July 18, 2017
21 Comments

A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


24/7 Epilepsy Foundation Helpline

July 5, 2017
21 Comments

Do you have questions about seizures or epilepsy?

The Epilepsy Foundation’s Helpline is now available 24 hours a day, 7 days a week.

Trained information specialists are now standing by to answer your questions about epilepsy and seizures.


Pregnancy with Epilepsy — Medication Dangers

July 1, 2017
4 Comments

According to the Epilepsy Foundation, mothers taking seizure medication, risk birth defects of 4 to 8 percent — compared with 2 to 3 percent for all babies. Not much of a difference.

But the risk seems to be highest when multiple seizure medications are taken. Yet, without medication, uncontrolled seizures may deprive the baby of oxygen. Seizures can also increase the risk of miscarriage or stillbirth.

So, it’s important, as you know, to get the right balance.


Colds, Flu and You…

June 4, 2017
28 Comments

With all the colds and flu going around, it’s not easy to figure out which medications which are safe to take.

Obviously, the best way to manage medication interactions is to avoid medications that are known to cause problems.

A few medicines that you pick up off the shelf at the drug store can potentially increase the frequency of seizures in people with epilepsy, or even cause first-time seizures.


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
4 Comments

It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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