Epilepsy Talk

Secrets to Better Care from Your Doctor…

August 15, 2018
6 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


“Time Out”

May 11, 2018
21 Comments

I’ll be off the web from Friday 5/11 — Wednesday 5/16, spending some quality “together time” with my niece.

I’m sorry if any of my responses are delayed.


Posted in Epilepsy
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Is it Organic?

April 7, 2018
14 Comments

For quite some time, there’s been an explosion of health food products on the market, specifically advertised as either “organic foods” or “natural” foods.

Most people don’t know that there is a major difference between “organic” and “natural” foods, believing that the two are interchangeable.

But there’s a huge difference between a food labeled “natural” and one that is labeled “organic.”


Zinc Can Help You Think!

April 4, 2018
21 Comments

Zinc should be part of any balanced diet, but it also regulates signals in your brain.

It’s been found to play a critical role in coordinating communication between cells in the brain, possibly governing the formation of memories and controlling the occurrence of epileptic seizures.


What’s Sweeter than Sugar and Good for You Too?

March 25, 2018
31 Comments

For many, high sugar intake can cause seizures…along with emotional instability…dizziness…depression…food allergies…diabetes…and osteoporosis…to name just a few.

Even worse, aspartame interacts with anti-seizure medication.

And over the years, various reports have implicated aspartame in headaches, memory loss, seizures, vision loss, coma, and cancer.

It also appears to worsen or mimic the symptoms of such conditions as fibromyalgia, MS, lupus, diabetes, Alzheimer’s, chronic fatigue, and depression.

And, after receiving some 10,000 consumer complaints, the FDA compiled a list of 92 symptoms linked to aspartame — including death.

But there are two healthy alternatives…


Salba — The Super Food

March 21, 2018
30 Comments

You probably already know a lot about all the benefits of Omega-3 fatty acids. About how they are crucial to the proper development and function of cell membranes in the brain.

And how, according to researchers at Emory University, one particular fatty acid – DHA — is found to be at critically low levels in patients with uncontrolled epilepsy. Which is why doctors recommend diets rich in Omega-3.

However, there’s a new nutrient that’s BIGGER and better…


Science Daily: Glucosamine dampens the brain hyperexcitability seen in seizures or epilepsy

March 15, 2018
18 Comments

Researchers have found that inducing a biochemical alteration in brain proteins via the dietary supplement glucosamine was able to rapidly dampen that pathological hyperexcitability in rat and mouse models.

These results represent a potentially novel therapeutic target for the treatment of seizure disorders, and they show the need to better understand the physiology underlying these neural and brain circuit changes.

Seizure disorders — including epilepsy — are associated with pathological hyperexcitability in brain neurons.


SeizAlarm — Apple’s New Seizure Detector — Help is Always Just a Button Press Away

February 10, 2018
13 Comments

Greg Pabst and his neurologist were trying to get a handle on his adult onset epilepsy when the doctor’s mention of the newly announced Apple Watch gave Pabst an “ah-hah” moment.

The doctor was discussing tools for Pabst to chart his seizures and send alerts to emergency contacts.

“Then he said, ‘It’s only a matter of time before somebody does that for the Apple Watch,’ ” Pabst, 38, recalled.

“Then I thought maybe it should be me.”


Help Line

September 25, 2017
5 Comments

The secret here is the numbers 211.

Go to the website: http://www.211.org/. Where available, 211 allows people to give help and to get help.

211 can also give people who live in rural areas better access to health and human service information.


Posted in Epilepsy, Tips

Rewiring the Brain with Cell Transplantation

August 9, 2017
5 Comments

Cell transplantation is an emerging approach for treating drug resistant epilepsy.

Regenerative medicine such as this, is a relatively “simple” process in that stem cells are often cultured from the patient’s own tissue, then processed and transfused back into the body.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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