Epilepsy Talk
Help Save Our Democracy!
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Reclaim our vote. And pass the word along to others.
In these days of postal problems and uncertainty, the more people who vote, the more votes can be counted.
Including yours.
Tags: 2020 goals, ballot, democracy, freedom, mail, nonprofit, postal problems, suppression, voter suppression, voter uncertainty, voters nationwide
Can I Substitute Generic Drugs for My Anti-Seizure Medications?
35 Comments
The controversy about generic drugs continues…
Who’s Profiting From Your Outrageous Medical Bills?
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This is from the NEW York Times, February 14, 2020.
It speaks of the secret methods of billing. Who pays and who does not. (A precious few.)
Is it ADHD…Epilepsy…or Both?
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ADHD is the current term for the neurological condition formerly known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Organic Brain Syndrome, Minimal Brain Dysfunction, and Minimal Brain Damage.
About 5% of children in the general population have ADHD. However, about 30-40% of children with epilepsy may have ADHD or attention problems. Also, ADHD is seen more often in boys than in girls (some medical professionals claim this ratio to be as high 4 to 1).
Tags: absence seizures, academic achievement, ADHD, attention problems, behavioral difficulties, cognitive, hyperactive disorder, inattentiveness, intellectual, language, learning difficulties, memory, motor, neuropsychologist, Ritalin, spatial, staring spells
Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures |
7 Comments
The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.
Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.
Brain stimulation has now been shown to offer significant relief to patients with intractable seizures, for whom drugs and other treatments have not worked.
Auras without Seizures
72 Comments
Do any of these sensations sound familiar to you?
Suddenly you’re sweating, flushed, become pale or have goosebumps.
Your stomach feels queasy, like you’re going to puke.
There’s a foreboding or fear that something awful is about to happen.
Tags: aura, deja vu, distortion, foreboding, no seizure, odd sensation, perceptions, simple partial seizure, spatial, visual
CBT — When you feel that you’ve hit rock bottom…
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Sara had a brain surgery gone wrong. She spent all of her savings and all of her resources on rehab. One year later, she went home, only to be able to toilet herself and say “dog”. She was lost.
Both physically and mentally. You might say she was “a basket case”.
Sandy was in a near fatal car accident. She survived, but just barely. After her physical healing, she said she couldn’t put two sentences together.
Then she heard about CBT.
Tags: anxiety disorders, behavioral therapy, behaviors, CBT, Cognitive Behavioral Therapy, cognitive therapy, control, coping strategies, depression, feelings, Panic Attacks, phobias, post-traumatic stress disorders, problem-solving, psychiatric medications, severe mental illness., thoughts
Epilepsy And Complementary Medicine…
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Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.
There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)
Tags: acupressure, acupuncture, aromatherapy, biofeedback, chiropractic care, Complementary Alternative Medicine, essential oils, herbal medicine, Homeopathy, massage, meditation, Naturopathy, Orrin Devinsky, reflexology, relaxation techniques, seizure control, stress reduction, tai chi, yoga
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Epilepsy Talk 