Epilepsy Talk

Gratitude is the Attitude

November 26, 2020
21 Comments

We have so much to be grateful for, especially me:


Seizures won’t wait — even during COVID-19

November 20, 2020
12 Comments

COVID-19 seems to be knocking on everybody’s door. Along with the peril and the terror.

And the possibility of seeing your doctor during these dangerous times seems risky, at best.

So, you can’t see the doctor and they can’t see you.

Except in a hospital setting, critical care or a clinic.

That could means more exposure. More jeopardy. Is it really worth the exposure?


Epilepsy Studies: True or False?

November 15, 2020
12 Comments

There’s a “Golden Rule” which says: “He who has the most gold makes the rules.”

And who might that be? And what are the methods used?

Some are simply amazing. (Or at least I thought so.)

But they all follow the “Golden Rule.”


Now why didn’t I think of that?

October 24, 2020
6 Comments

“If you’re going through hell, keep going…” Winston Churchill


An Earbud to Predict Seizures?

October 4, 2020
34 Comments

Imagine a tiny, unobtrusive brain monitor — like an earbud or a hearing aid — that could read brainwaves through the ear.

Amazing as it sounds, this tiny device could help predict seizures and track daily seizures in people with uncontrolled epilepsy, according to a small pilot study.


SUDEP – Who’s at Risk?

September 27, 2020
28 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.

Though it is still difficult to know exactly how many people with epilepsy die each year due to SUDEP, estimates range from 7–17% (according to the National Institute of Health) and perhaps 50% among patients with refractory epilepsy.


Exciting Stuff!

September 12, 2020
34 Comments

A Facebook follower suggested today that I apply to the International Bureau for Epilepsy for one of their Global Teams.


Violence and Epilepsy

September 10, 2020
32 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.”

Which didn’t exactly help.


The First Time…

August 29, 2020
26 Comments

I remember five jets of water, pummeling me from the shower walls and ceiling.

All of a sudden, a metallic taste in my mouth.

Strange and disgusting.


If You Didn’t Have Epilepsy, How Would You Change Your Life?

August 21, 2020
71 Comments

If you did have the options — without epilepsy haunting you — what would you choose to do?


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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