Epilepsy Talk

Epilepsy and anesthesia…

May 22, 2023
2 Comments

Anti-epileptic drugs (AEDs) cause unique considerations for patients with epilepsy because skipping, or even delaying, a single dose, can result in seizures.

Strategies for avoiding or minimizing skipped doses are paramount in the care of patients with epilepsy.


Before you agree to surgery… 

May 18, 2023
16 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


What’s one of the most wonderful things your mother did for you?

May 12, 2023
5 Comments

For me it was something very simple. She bought me a notebook.

When I was in fifth grade, I got sent home with a note to my parents, accusing me of plagiarism.


Truth or Lies: Epilepsy in Movies and TV

May 9, 2023
3 Comments

Apart from tuberculosis and syphilis, few diseases have been as steeped in myth as epilepsy.

The generalized tonic-clonic seizure has been associated with phenomena ranging from divine powers and possession by spirits to mental and moral depravity.

This has been chronicled and described extensively in fiction and feature films.

They do nothing but reinforce the stigma that is rampant about the condition.

But not always.


Time Out — Thursday May 4th, through Tuesday May 9th.

May 4, 2023
10 Comments

I’m going to the Land of Sunshine where it’s supposed to rain all weekend.


Posted in Epilepsy
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Food or medications — which would you choose?

May 1, 2023
7 Comments

It’s heartbreaking, but all too common…

A patient calls their doctor after repeated seizures.

He had missed his medication for about a week. He had recently been laid off and lost insurance coverage.

He couldn’t afford to refill his eslicarbazepine acetate (Aptiom) prescription.


Epilepsy – a dirty little secret? 

April 28, 2023
2 Comments

Why would you say: “I have epilepsy.”

To be included — or excluded?

To be accepted — or rejected?

To be understood — or misunderstood?


Depression is quiet…

April 25, 2023
9 Comments

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.


What 2/3 of doctors don’t want you to see…

April 22, 2023
5 Comments

When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes.

But doctors aren’t nearly as enthusiastic.

The idea of opening up doctor’s notes has been around for decades.

Advocates figure that patient oversight will reduce medical errors and help patients be more engaged.

Patients have a legal right to see their records.

But actually getting those notes — especially those that doctors take during a visit, can be painfully slow (and expensive!)


Epilepsy and Diabetes — Confusion or Common Cure?

April 18, 2023
2 Comments

A seizure can be quite serious and can be a scary experience for not just the person experiencing it but for the people around them.

While seizures are caused due to many reasons, one of the prime reasons for a seizure to occur is when people have epilepsy.

Among those types of seizures are diabetic seizures, which can sometimes turn into an emergency quite quickly.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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