Epilepsy Talk

What’s one of the most wonderful things your mother did for you? | May 12, 2023

For me it was something very simple. She bought me a notebook.

When I was in fifth grade, I got sent home with a note to my parents, accusing me of plagiarism.

My parents called me into their room that evening (which was always a bad sign when you were signaled out from your sibs), and they asked me about the poem and where I found it.

I told them I found it in my heart and recited it.

They were dumbstruck.

I went on to be accused of plagiarism, but not before my mother went out and bought me this wonderful notebook.

It said “Scribbles” and had a pen attached.

From then on, I was off.

And the rest is history.

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  1. My mother was a stickler for filling prescription,and keeping a seizure Bibble it was always in her pocket book. Trades I kept up on when I got older.

    Liked by 1 person

    Comment by Mark D Geist — May 12, 2023 @ 9:56 AM

  2. My mom taught me the life skills I would need to make it in the world. Then she taught me how to be happy in my own four walls. She taught me the importance of keeping a journal recording my medication, seizure activity and doctor appointments and any changes. Mom was amazing and I try to be a good person like she taught.

    Liked by 1 person

    Comment by Bonnie — May 12, 2023 @ 1:38 PM

  3. My mother taught me that whenever I was feeling really down, the best remedy was to do something to help someone else! That has worked me out of some serious depression.

    Liked by 1 person

    Comment by maralou1 — May 12, 2023 @ 6:52 PM

  4. Always being there, & yet I hate it when she has to see me in a seizure, never knowing if that time is my last knowing how a grand mal seizure can kill ”anyone” if it is that much power in it, that you die. Then I always heard those comforting words when mom was there who you see 1st. Thank God I have not had to put her though all of that for the past 18 months, thanks to XCOPRI, as I know sometimes a drug can just stop working, because it has happened that way in the past to me. My mom now is taking more BRAND NAME drugs as I am and they do make a BIG difference in how you FEEL & LIVE. Nothing but BRAND NAME drugs for the both of us. But you still have to know WHAT IS IN THEM to get that right BRAND name drug to take. Doctors will NEVER find that out for you, that is always OUR work to do.

    Liked by 1 person

    Comment by James D — May 13, 2023 @ 7:47 AM

  5. She loved me just the way I am. I miss her terribly.

    Liked by 1 person

    Comment by pabooklover — May 13, 2023 @ 4:31 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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