Epilepsy Talk

Auras without Seizures

June 15, 2020
72 Comments

Do any of these sensations sound familiar to you?

Suddenly you’re sweating, flushed, become pale or have goosebumps.

Your stomach feels queasy, like you’re going to puke.

There’s a foreboding or fear that something awful is about to happen.


CBT — When you feel that you’ve hit rock bottom…

June 13, 2020
7 Comments

Sara had a brain surgery gone wrong. She spent all of her savings and all of her resources on rehab. One year later, she went home, only to be able to toilet herself and say “dog”. She was lost.

Both physically and mentally. You might say she was “a basket case”.  

Sandy was in a near fatal car accident. She survived, but just barely. After her physical healing, she said she couldn’t put two sentences together.

Then she heard about CBT.


Weird Epilepsy Triggers

March 27, 2020
57 Comments

Here’s a list of uncommon epilepsy triggers you may have experienced or know about.

Feel free to add to this list of the weird and the unknown…


Here’s The Difference Between Coronavirus And Flu Symptoms

March 9, 2020
2 Comments

There may be an epidemic of the Cornovirus, but there seems to be a pandemic of panic.

COVID-19 and the flu present in similar ways. This is how you can tell them apart.


Good news, there’s a new AED in town!

December 4, 2019
68 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Sodium — How Much Does Your Body Need?

November 22, 2019
13 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.

Seizures from low sodium levels are most likely to occur from a serious disease, acute infection or because you tried to run a marathon on a hot day.

One-time or isolated seizures from these causes don’t warrant a diagnosis of epilepsy.

However, epilepsy is sometimes misdiagnosed and you may have an underlying health condition that’s causing an electrolyte problem.


Drug Resistant Epilepsy News

September 30, 2019
34 Comments

News of this groundbreaking scientific discovery comes from “zarabia” a member of the epilepsy support board at WebMD.com.  It’s very exciting and offers real hope.


Epilepsy and Electrolytes

September 12, 2019
32 Comments

It’s a situation often mentioned but rarely understood – the effects electrolytes have on seizures.

But a simple blood test can detect the danger of unbalanced electrolytes.

Taking extra doses of certain minerals can help to prevent side-effects that may follow the long-term use of some seizure medicines.

And taking supplements can help protect the brain (as can a B-Vitamin complex), but it’s no guarantee of seizure control, since there are a lot of different factors at play that can trigger a seizure.

But, making sure you have the right nutrients is just as important as having the right balance between all of them, so that proper electrical connections are maintained.


Scientists Find a Possible Link Between Gut Health and Depression

February 8, 2019
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New research has identified a possible link between gut health and brain function.

Building on this work, the study reveals that clinical depression could also be affected by the amounts of certain bacteria in the gut.

For all of us with depression, this could be a real breakthrough.


If You DON’T Have Epilepsy, Then WHAT Is It???

September 11, 2018
15 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.

In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy”,  I thought I had it all covered.

But, believe it or not, that was just the tip of the iceberg.

I dug deeper and researched further and here is what I learned about signs and signals which might cause epilepsy, might show the same symptoms of epilepsy, or might be masquerading in their own way as epilepsy…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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