Epilepsy Talk
$56,000 a year for an unproven drug!
Leave a Comment
Getting the FDA to retract a decision, is like getting the toothpaste back in the tube, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all star Alzheimer’s drug aducanumab.
Whether it’s “yes” or “no,” there is no “maybe so”.
Tags: $56000 a year, aducanumab, Alzheimer’s, efficiency, FDA, not proven, patients, risk, side-effects
A ‘Pacemaker’ for the Brain…Reducing Seizures by as Much as 50%…and Depression up to 30%
3 Comments
Some people know Deep Brain Stimulation (DBS) as a treatment for epilepsy, reducing seizures by as much as 50 percent.
It’s designed for the considerable number of patients suffering from medically refractory epilepsy who are not candidates for for resective brain surgery.
This tiny pacemaker-like device, is implanted in the brain to deliver a small amount of electricity when it detects the onset of a seizure.
But, what most people DON’T know know is that Deep Brain Stimulation, can help depression by up to 30 per cent.
Tags: can help depression by up to 30%, DBS, Deep Brain Stimulation, emotions, individualized, nearly 1/3 of the more than 250 million people with depression, one size does not fit all, pacemaker-like device, reducing seizures bu as much as 50%, tiny
What Is the FDA Thinking?
3 Comments
Getting the FDA to retract a decision is like getting the toothpaste back into the tube, once it’s been squeezed out.
Take the current all-star Alzheimer’s drug aducanumab. It’s not a proven but it IS approved. To the hefty price tag of $56,000 a year!
Vagus Nerve Stimulation…Is it for YOU?
12 Comments
Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?
I did some research and got the low-down on what it is, how it works and some interesting statistics.
Tags: brain, depression, electrical pulses, improvement, memory, mood swings, refractory, setting, signals, vagus nerve stimulator
Sleep and seizures…at what cost?
18 Comments
Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.
What is your hidden talent?
15 Comments
Inside of you is something special waiting to break out.
Maybe you’re an artist…actor…architect…painter…poet…
philosopher…singer…or someone you just don’t know.
Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.
Tags: actor, architect, artist, creativity, electrical storms in the brain, inspiratin, painter, philosopher, poet, rewarding, singer, wonderful escape
Cape May, here I come!
12 Comments
I’ll be gone from Sunday 8/15th-Wednesday 8/18th.
Please take care of one another. And be well. I’ll be thinking of you.
Epilepsy: Meditation vs. Medication
2 Comments
You can have medication without meditation. Most of us do.
You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.
But together, they can enhance one another.
Tags: benefits, Complementary Alternative Medicine, enhance, Epilepsy, medication, meditation, relaxation, risks, seizures, stress
$112 billion new Alzheimer’s drug in question
4 Comments
Getting the FDA to retract a decision is like getting the toothpaste back in the tub, after it’s been squeezed out…
Whether it’s “yes” or “no,” there is no “maybe so”.
A good example is the new all star Alzheimer’s drug aducanumab.
Tags: $112 billion costs, &56000 a year, alzheimer's, FDA, Medicare, not proven, side effects
The Perils of Discontinuing Your Meds
21 Comments
One of the most common questions is “when can I stop taking my meds?”
Especially for those whose seizures have been under good control.
It makes sense. Because if you’re doing well, you start to wonder: “Why do I need these meds anymore”?
About the author
Epilepsy Talk 