Epilepsy Talk

What were your most formative moments?

January 23, 2022
1 Comment

For me, it was three different stages, ages and issues…


Art therapy for epilepsy

January 22, 2022
3 Comments

Reach out. Be creative. Feel good about yourself. That’s what art therapy is all about.

The creative process of art can help resolve conflicts, develop interpersonal skills, manage behavior, reduce stress and build the self-image of children, adolescents and adults with epilepsy.

It can help develop artistic expression…build autonomy…empower …build a stability and a sense of self-worth as well as connecting with others in a new and wondrous way.


How Music Soothes Your Seizures… 

January 19, 2022
4 Comments

Music is food for the soul, the mind and the body.

Great music, when carefully selected, can change our moods, energize us, calm us, improve our mental focus, lift us up spiritually, and help us become more healthy.


Working, Seizures, and Secrets

January 16, 2022
10 Comments

When I was in my 30’s, I worked real hard and made pots of money.

No sleep.

Many seizures.

But big bucks.


Epilepsy and Romance — Getting Personal

January 14, 2022
6 Comments

Romance is so many different things to different people.

But to me, intimacy requires acceptance, faith and loyalty.

The question is; how do you get there?

Especially when you have epilepsy?


There’s a hidden artist inside you!

January 12, 2022
4 Comments

Maybe you’re an artist…actor…architect…painter…poet…philosopher…singer…or someone you just don’t know.

Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.


Ode to a Doctor’s Visit…

January 10, 2022
7 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…

We spend time planning in anticipation of this precious, important moment…


Posted in Epilepsy

Secrets to Better Care from Your Doctor…

January 9, 2022
2 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


2022 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

January 8, 2022
8 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


2021-2022 Top-Ranked Hospitals for Neurology & Neurosurgery

January 7, 2022
5 Comments

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2021-2022 evaluations, U.S. News evaluated 1,248 hospitals and ranked the top 50 that treat many challenging neurological patients for brain hemorrhage, conditions affecting the central nervous system, spinal disorders and injuries, degenerative nervous system diagnoses such as MS, care for stroke, seizures, meningitis and more.

The top-scoring hospitals are listed below.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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