Epilepsy Talk

Calcium – Friend or Foe?

July 1, 2022
14 Comments

After talking to a famous epileptologist, I learned that calcium is really a two-edged sword. Which surprised (and scared) me.

I’ve always read that calcium was imperative if you were taking anti-epilepsy drugs — especially Dilantin. Even if your doc “forgot” to tell you!


The scandal of aspartame…

June 29, 2022
3 Comments

You probably already know that aspartame is a no-no. But just in case you weren’t sure why, here are the reasons and the scandal…

For 16 years, the FDA refused to approve aspartame.

The FDA’s own toxicologist told Congress that: “Without a shadow of a doubt, aspartame can cause brain tumors and brain cancer and violated the Delaney Amendment, which forbids putting anything in food that is known to cause cancer.” — FDA Toxicologist, Dr. Adrian Gross


Xcopri provides long-term seizure control in patients with focal epilepsy

June 26, 2022
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Long-term use of Xcopri was safe and reduced seizures by more than 90% in adults with uncontrolled focal seizures, according to results of an open-label extension study published in Neurology.


MSG: Dangerous or Deadly?

June 26, 2022
1 Comment

MSG can be responsible for long term neurological damage.

It’s been linked to diabetes, stroke, epilepsy, multiple sclerosis, stomach disorders, fatigue, depression, headaches and migraines, grand mal seizures, irregular or rapid heartbeat, nausea and vomiting, numbness in the fingertips, autism, ADHD, asthma-like symptoms, fibromyalgia type pain, disorientation and confusion, and degenerative disorders such as Parkinson’s and Alzheimer’s.


New data backs use of medical cannabis for epilepsy, pain and anxiety…

June 23, 2022
7 Comments

Two recent studies offer positive news about medical cannabis, suggesting that marijuana products improve physical and cognitive symptoms, boost quality of life, and rarely produce signs of problematic use.


Epilepsy drug side-effects…

June 19, 2022
14 Comments

They’re necessary, but not necessarily nice.

And every med has its own side-effects.

Just as different people experience different difficulties.

But here‘s the low-down on some possible side-effects.

I hope you don’t have to suffer any of them. (Or as few as possible.)


Brand-Name Epilepsy Drug Prices Jumped 277% Over 11-Year Period

June 17, 2022
8 Comments

“Compared with 2008, costs for brand-name anti seizure meds (ASMs), rose from approximately $2,800 to $10,700 per year in 2018, while costs for generic brand ASMs dropped $800 to $460. As a result, many generic ASMs cost about 10 times less than their brand-name counterparts…”


Buyer Beware!

June 16, 2022
5 Comments

It’s amazing — and scary — how wildly drug prices can vary between pharmacies, especially when you don’t have insurance.

Here are some comparisons:


Suicide and epilepsy…

June 14, 2022
6 Comments

We are in a mental health crisis in this community. And not enough is being done to avert it.

According to a peer-reviewed journal article from Epilepsy and Behavior, statistics concluded that people with epilepsy are 22 times more likely to commit suicide than the general population.


If you knew someone who had just been diagnosed with epilepsy, what would you advise?

June 10, 2022
15 Comments

I’d advise them to advocate for themselves.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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