Epilepsy Talk

Epilepsy and Melatonin – Yes? No? Or Maybe So?

October 20, 2021
3 Comments

Most of us are familiar with melatonin and it’s purpose: To help you sleep. Or at least to help you get to sleep.

In fact, melatonin is one of the most commonly used supplements in the United States. (Lots of sleepless people out there!)


BIG Pharma’s Outsized Profits

October 18, 2021
3 Comments

Just how profitable is the pharmaceutical industry?

A study indicates that the profits gained by drug developers outpaced those of other publicly-traded companies by a wide margin over an 18-year period.

Merck & Co., long a standard bearer for the U.S. pharmaceutical industry, earned $10 billion in profits last year. Pfizer, its larger peer, booked even more: $16 billion.


Tell us about your first seizure…

October 14, 2021
25 Comments

All of a sudden, it felt like my blood was rushing out of my toes. As all of my energy drained out of me, I thought: “I’m going to drown.” Then, as I fought with the locked door handle to get out, I realized: “I’m going to die.”


Hospital Bill Relief…

October 12, 2021
5 Comments

One of the best-kept secrets in the healthcare industry is that there are financial and charitable aid programs available to lighten the staggering financial and emotional burden caused by medical expenses.

Believe it or not, that financial aid department can become your best friend. They have the power to make your bills more manageable…consolidate them…discount them…and work out a payment plan at reduced cost.

But first, you have to ask…


Hospitals Criticized For Keeping Quiet On Charity Care…

October 10, 2021
3 Comments

“Too many nonprofit hospitals fail to adequately publicize their charity-care programs, two advocacy groups say in a survey report…”


A ‘Pacemaker’ for the Brain…Reducing Seizures by as Much as 50%…and Depression up to 30%

October 7, 2021
3 Comments

Some people know Deep Brain Stimulation (DBS) as a treatment for epilepsy, reducing seizures by as much as 50 percent.

It’s designed for the considerable number of patients suffering from medically refractory epilepsy who are not candidates for for resective brain surgery.

This tiny pacemaker-like device, is implanted in the brain to deliver a small amount of electricity when it detects the onset of a seizure.

But, what most people DON’T know know is that Deep Brain Stimulation, can help depression by up to 30 per cent.


The Four Stages of Seizures – Prodromal, Auras, Ictal and Postictal

October 5, 2021
5 Comments

Welcome to the world of ictals and postictals. A world you’re probably familiar with.

Seizure Phases

A seizure often has four distinct phases: Prodromal Symptoms, Auras, Ictal and Postictal Stages.

Let’s start at the very beginning.


What Is the FDA Thinking?

October 2, 2021
3 Comments

Getting the FDA to retract a decision is like getting the toothpaste back into the tube, once it’s been squeezed out.

Take the current all-star Alzheimer’s drug aducanumab. It’s not a proven but it IS approved. To the hefty price tag of $56,000 a year!


Epilepsy Triumphs

September 28, 2021
13 Comments

This is a smattering of people from all walks of life, all over the world, who have had the courage, grit and determination to take charge of their epilepsy and not forfeit their dreams.

They have triumphed against all odds…


Seizure Free – A Hope or a Promise?

September 25, 2021
18 Comments

Is it a reality…a hope…or a promise?

Have you been there once for a visit?

And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change.

Everything is in a state of flux.

Drugs, science, our bodies, our brains.

From that you can choose hopelessness. Or hope.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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