Epilepsy Talk

SUDEP — Who’s at Risk?

August 18, 2018
27 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.


Secrets to Better Care from Your Doctor…

August 15, 2018
4 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


If You Didn’t Have Epilepsy, How Would You Change Your Life?

August 10, 2018
75 Comments

If you did have the options — without epilepsy haunting you — what would you choose to do?


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

August 6, 2018
30 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. 

But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.

Almost all first, second and third-generation epilepsy drugs lose their efficacy after prolonged treatment.

Perhaps it’s because your metabolism builds up a tolerance to the drug. And ramping up the dosage can work.

Or it may be a functional tolerance where your brain receptors have become resistant to the drug. In that case, a change in medications may help. But whatever the cause, you’re not alone…


Déjà Vu or Prescience?

August 1, 2018
24 Comments

Think of it as knowing something from the past…or feeling a premonition of the future.

Those who have experienced the déjà vu feeling describe it as an overwhelming sense of familiarity, with something that shouldn’t be familiar at all.

Those who experience prescience, feel they have the ability to see into the future in some way.


21 Praises of Wisdom to Pass On…

July 28, 2018
21 Comments

1.   Give people more than they expect and do it cheerfully.

2.   Marry a man/woman you love to talk to.  As you get older, their conversational skills will be as important as any other.

3.   Don’t believe all you hear, spend all you have or sleep all you want.

4.   When you say, “I love you,” mean  it.

5.   When you say, “I’m sorry,” look the person in the  eye…


Stress and Seizures…

July 23, 2018
40 Comments

Let’s be honest, you probably didn’t plan on having epilepsy.

But here we are.

And we all know that stress is #1 in the hit parade of seizure triggers.

Endless surveys prove the fact.

Most people think of stress as being related only to unpleasant or sad times in their lives.

However, even “happy” stress can trigger seizures!


Foods That Fight Stress…

July 19, 2018
10 Comments

I worked as a writer in the health and wellness field for more than ten years.  So I know a thing or two about this stuff.  (And stress!) 

But I also know from personal experience that epilepsy is a very unique condition. 

Between all the different types of seizures, and triggers, and meds…there is no one-size-fits-all solution.

The same goes for de-stressing your diet. 
What works for one might not work for another.  And it certainly doesn’t take the place of meds. 

However, I do believe that although living a healthy lifestyle won’t cure you…it can certainly help you.

So, here’s some information for sensible stress-busting eating…


Some Stress and Anxiety Solutions…

July 14, 2018
22 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


Epilepsy Triumphs

July 10, 2018
18 Comments

You can either become a victim of epilepsy and let epilepsy take over your life.

Or you can simply say, “I have epilepsy” and decide your own fate.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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