Epilepsy Talk

2017 Top-Rated Hospitals for Neurology and Neurosurgery

January 22, 2017
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Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top- ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.

You can find information here about 1,349 hospitals in Neurology and Neurosurgery. All treat significant numbers of difficult patients…


2017 Patient Recommendations for TOP Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors

January 14, 2017
27 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

January 12, 2017
10 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Ode to a Doctor’s Visit…

January 5, 2017
21 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we struggling…

We spend time planning in anticipation of this precious, important moment…

We invest hope and sometimes fear into the event…

We have often orchestrated endless tests and other Doctors’ assessments in order that instruments will be tuned to perfection…that they might render us an orchestral visit…

The Doctor will listen to us as we have observed our condition relentlessly and respond with the respect due, to the information we offer and know what is needed…

That is what we ask.

By Sally Komar


Happy New Year!

January 1, 2017
12 Comments

New year’s blessings to all my Epilepsy Talk friends.


2017 Resolutions

December 31, 2016
7 Comments

We all have them. Whether we keep them a secret to ourselves or proclaim them to the world.

I guess mine are now hardly secret.

But here I go, taking the plunge…

My resolutions for 2017:


Epilepsy at the Movies – Don’t Believe What You See or Hear!

December 27, 2016
12 Comments

I bet you won’t be surprised to hear that epilepsy is most often depicted in sci-fi and horror films.

Just think of “The Andromeda Strain”, “Crazed”, “Deadwood”, “The Exorcist”, “The Exorcism of Emily Rose”, “Frankenstein”, “The Garden State”, “Lighthouse” and “The Terminal Man” to name a few…


Laser Surgery — Breakthrough Epilepsy Treatment!

December 23, 2016
4 Comments

“Based on our experience, we believe the use of MRI-guided laser surgery will change the face of epilepsy treatment and provide a life-changing option for many epilepsy surgery candidates — both children and adults”…


Who’s at Fault?

December 16, 2016
12 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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