Epilepsy Talk

TNS vs. VNS – NO SURGERY!

September 15, 2021
10 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve.


Vagus Nerve Stimulation…Is it for YOU?

September 12, 2021
8 Comments

Having a Vagus Nerve Stimulator implanted can be a tough decision. Is it right for you? Will it work? What are the side effects and consequences?

I did some research and got the low-down on what it is, how it works and some interesting statistics.


Brain Surgery — Questions to Prepare Yourself

September 8, 2021
18 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery…


Blood Tests May Help Diagnose Epilepsy

September 5, 2021
5 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.


Post Traumatic Stress Disorder and Epilepsy

September 2, 2021
8 Comments

What was once known as “shell shock” is now called Post-Traumatic Stress Disorder. (PTSD).

PTSD affects about 7.7 million American adults, and while it’s impossible to predict who will develop PTSD in response to trauma, there are certain risk factors that increase your vulnerability.

Of course, the first thought is of veterans. But anyone can get PTSD at any age.

Going through trauma is not rare. About 6 out of every 10 (or 60%) of men and 5 of every 10 (or 50%) of women experience at least one trauma in their lives.


Sleep and seizures…at what cost?

August 30, 2021
15 Comments

Sleepless nights. Exhausted afternoons. Confusion. Memory loss. Trouble with concentration, mood swings and of course, seizures.


Buyer beware!

August 27, 2021
11 Comments

It’s amazing — and scary — how wildly drug prices can vary between pharmacies. And between name brand drugs and generics, especially when you don’t have insurance.

Here are some comparisons:


Déjà Vu or Prescience?

August 25, 2021
14 Comments

Think of it as knowing something from the past…or feeling a premonition of the future.

Those who have experienced the déjà vu feeling describe it as an overwhelming sense of familiarity, with something that shouldn’t be familiar at all.

Those who experience prescience, feel they have the ability to see into the future in some way.


What is your hidden talent?

August 22, 2021
15 Comments

Inside of you is something special waiting to break out.

Maybe you’re an artist…actor…architect…painter…poet…

philosopher…singer…or someone you just don’t know.

Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.


12 Recipes For Happiness — Even If You Have Epilepsy!

August 18, 2021
10 Comments

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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