Epilepsy Talk

Conversion Disorder and Epilepsy…

February 24, 2018
1 Comment

What is it?

Is it epilepsy or conversion disorder?

The term “conversion” comes from the idea that psychological distress is being converted into a physical symptom.

The cause is not known. 


Other Voices — Other Lives

February 17, 2018
18 Comments

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”


Three Anti-Seizure Diets That Could Change Your Life…

February 15, 2018
18 Comments

Just when you feel that all is lost, and you’re about to give up on your meds, there is another option.  (In fact, there are three!)

They may not beat your epilepsy (although some people say they do!)

But they can help reduce your seizures and the amounts of medication needed.


SeizAlarm — Apple’s New Seizure Detector — Help is Always Just a Button Press Away

February 10, 2018
13 Comments

Greg Pabst and his neurologist were trying to get a handle on his adult onset epilepsy when the doctor’s mention of the newly announced Apple Watch gave Pabst an “ah-hah” moment.

The doctor was discussing tools for Pabst to chart his seizures and send alerts to emergency contacts.

“Then he said, ‘It’s only a matter of time before somebody does that for the Apple Watch,’ ” Pabst, 38, recalled.

“Then I thought maybe it should be me.”


The Nightmare of Nocturnal Seizures

February 7, 2018
17 Comments

According to an article in Journal of Neurology, Neurosurgery & Psychiatry, if more than 90 percent of your seizures occur while sleeping, you are said to have sleep seizures.

The article also notes that an estimated 7.5 percent to 45 percent of people who have epilepsy have some form of sleep seizures.

Since seizures occur in sleep during the night, it’s often hard to diagnose them, except for unusual movements at night, confusion upon awakening, bed wetting or falling out of bed.


Epilepsy And Sleep Apnea — A Dangerous Duo

February 3, 2018
10 Comments

Almost a third of people with epilepsy may suffer with undiagnosed sleep apnea, a sleep disorder which is dangerous because of the possible serious consequences.

Basically (as you probably already know), sleep apnea is characterized by abnormal pauses in breathing or instances of abnormally low breathing during sleep.

Each pause in breathing, called an apnea, can last from at least ten seconds to minutes, and may occur 5 to 30 times or more an hour, causing partial airway obstruction.


Move Over VNS…There’s A New Guy in Town!

January 28, 2018
21 Comments

What if I were to say there’s a new nerve stimulation therapy that requires NO SURGERY and reduces seizures among those who are drug resistant by about 40 percent?

SAY HELLO TO TRIGEMINAL NERVE STIMULATION!

The difference between this experimental device and the VNS is that the skin is never penetrated and the TNS is powered by an external device about the size of a large cell phone.


12 Recipes For Happiness — Even If You Have Epilepsy!

January 23, 2018
22 Comments

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…


The Stigma of Epilepsy…

January 14, 2018
26 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.


2018 Top-Rated Hospitals for Neurology & Neurosurgery

January 11, 2018
6 Comments

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top-ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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