Epilepsy Talk

Beyond EEGs…Diagnostic Tools for Epilepsy

October 19, 2016

How many of us have heard: “Your EEG is normal. You’re fine..”(“It’s all in your head?”)

I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…

Neurotherapy for Epilepsy, Pain, Parkinson’s and More…

October 16, 2016

People with Epilepsy, Parkinson’s Disease, Attention Deficit Disorder (ADD) or addictions may be able to learn how to ‘think themselves better’ by altering their brain waves to improve their symptoms.

A new form of treatment called neurotherapy (also known as neurofeedback) is similar to biofeedback but has a unique focus on controlling brain wave activity rather than skin temperature, heart rate, breathing and muscle tension.

The Stigma of Epilepsy

October 12, 2016

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.

Hope for the Future — Gene Therapy

October 7, 2016

Gene therapy is an experimental technique that uses genes to treat or prevent disease.

In the future, this technique may allow doctors to treat a disorder by inserting a gene into a patient’s cells instead of using drugs or surgery.

Researchers are testing several approaches to gene therapy, including:

Is Epilepsy Inherited?

October 4, 2016

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-8%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%. On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!

2016-2017 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

September 29, 2016
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The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2016-2017 evaluations, 50 pediatric centers were ranked for serious neurological problems.

Here are the top-ranked centers for children with serious neurological problems, ranked in order.

2016-2017 Top-Rated Hospitals for Neurology and Neurosurgery

September 26, 2016

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top ranking hospitals.

Attached is a link to their most current list for neurology and neurosurgery hospitals in the U.S.

Robotic Neurosurgery — The Future is Here Today!

September 21, 2016

“It’s as if I’ve miniaturized my body and gone inside the patient.”

A science breakthrough: Robotic neurosurgery.

This minimally invasive surgery avoids traditional drilling through the skull by using miniaturized surgical instruments that fit through a series of tiny incisions.

They are mounted on three separate robotic arms — allowing the surgeon maximum range of motion and precision and less trauma to the patient.

The Trouble with AEDs

September 10, 2016

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?

Conversion Disorder and Epilepsy

September 5, 2016

Is it epilepsy or conversion disorder?

The term “conversion” comes from the idea that psychological distress is being converted into a physical symptom.

The cause is not known.

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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