Epilepsy Talk

Is it ADHD…Epilepsy…or Both?

June 30, 2020
5 Comments

ADHD is the current term for the neurological condition formerly known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Organic Brain Syndrome, Minimal Brain Dysfunction, and Minimal Brain Damage.

About 5% of children in the general population have ADHD.  However, about 30-40% of children with epilepsy may have ADHD or attention problems. Also, ADHD is seen more often in boys than in girls (some medical professionals claim this ratio to be as high 4 to 1).


Treating Seizures — 7 Amazing New Breakthroughs

June 27, 2020
9 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on — all over the world — about predicting and preventing seizures. 


10 Ways to Cope with Your Stress and Anxiety

June 24, 2020
19 Comments

You’re choking. You’re drowning. You’re going down for the count. How many times have we all been there?

I’m sure everyone has their own way of coping — or else we wouldn’t be here.

Nonetheless, here are some helpful tips to get you over that hump…


Medical Mistakes Out of Control!

June 22, 2020
37 Comments

Here’s a sobering statistic for you…

Believe it or not, the total number of medical errors and deaths in the U.S. equals SIX jumbo jets crashing every day!

If a Jumbo Jet crashed and killed 280 people everyday…365 days a year…year after year…would you be concerned about flying?

Would you question the Federal Aviation Administration? Would you demand answers?

Think about it…close to 100,000 people dying every year from plane crashes. Sounds Ridiculous??!!


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures |

June 19, 2020
7 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.

Brain stimulation has now been shown to offer significant relief to patients with intractable seizures, for whom drugs and other treatments have not worked.


TNS vs. VNS – NO SURGERY!

June 18, 2020
7 Comments

The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.

As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.

Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve. Especially if the VNS treatment has proven ineffective.

And of course, what goes in, must come out. Anyway you look at it, there’s more surgery involved.

The up side to having a VNS is better seizure control.

The down side is discomfort, headaches, temporary hoarseness and shortness of breath.


Auras without Seizures

June 15, 2020
55 Comments

Do any of these sensations sound familiar to you?

Suddenly you’re sweating, flushed, become pale or have goosebumps.

Your stomach feels queasy, like you’re going to puke.

There’s a foreboding or fear that something awful is about to happen.


CBT — When you feel that you’ve hit rock bottom…

June 13, 2020
7 Comments

Sara had a brain surgery gone wrong. She spent all of her savings and all of her resources on rehab. One year later, she went home, only to be able to toilet herself and say “dog”. She was lost.

Both physically and mentally. You might say she was “a basket case”.  

Sandy was in a near fatal car accident. She survived, but just barely. After her physical healing, she said she couldn’t put two sentences together.

Then she heard about CBT.


Epilepsy And Complementary Medicine…

June 11, 2020
9 Comments

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)


Your birthday contribution would mean so much to me…

June 8, 2020
24 Comments

For my birthday this year, I’m asking for donations to the Epilepsy Foundation Eastern PA – EFEPA.

I’ve chosen this nonprofit because their mission is near and dear to my heart, and I hope you’ll consider contributing as a way to celebrate with me.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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