Epilepsy Talk

Autoimmune Epilepsy — Cause of Previously Unexplained Seizures? 

May 10, 2024
2 Comments

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

Here’s how it works:


Confessions of 20 Years with Epilepsy… 

May 7, 2024
7 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).

Guys never called back for a second date.

The Dilantin made me feel like a zombie…I even went into a coma once…


Who goes to Florida in May?

May 2, 2024
3 Comments

Me.

Certainly not for the heat and humidity, but to see my my beloved niece.


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If You Didn’t Have Epilepsy, How Would You Change Your Life? 

April 30, 2024
2 Comments

I have to admit, I’d still be a writer. Writing is my passion, it’s what gets me up in the morning and I couldn’t imagine living without it.

Yes, sometimes I can’t find the keyboard, sometimes I can’t think straight and sometimes, I can’t concentrate.


Return from the edge…

April 27, 2024
6 Comments

I almost died.

For a while I couldn’t even read.

My brain needed rebooting.

They told me my heart had stopped.

I was lucky to be alive.


Disabled? Do YOU want to work?

April 25, 2024
2 Comments

Are You A Social Security Beneficiary? Do you want to work?

Learn about the “Ticket To Work”!

The Ticket To Work Program can help Social Security beneficiaries go to work, get a good job that may lead to a career, save more money, and become financially independent, all while they keep their health coverage.

Sound too good to be true?


Many neurologists unaware of AED safety risks

April 22, 2024
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A study by Johns Hopkins researchers shows that a fifth of U.S. neurologists appear unaware of serious drug safety risks associated with various anti-epilepsy drugs, potentially jeopardizing the health of patients who could be just as effectively treated with safer alternative medications.


360 recommended life hacks you can trust…

April 18, 2024
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For 30 years, U.S. News & World Report’s rankings and advice have served as a valuable reference when making life’s toughest decisions.

They’ve rated the Best Hospitals, Best Colleges, and Best Insurance to guide readers through some of life’s most complicated decisions.

Take a look at some of the top categories their users have found helpful.


A neurologist talks about his own epilepsy…

April 16, 2024
6 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


Is your medication out of stock? Here’s how to get it anyway.

April 13, 2024
5 Comments

The pharmaceutical supply chain is broken, but if you’re facing a drug shortage, you have more power than you think…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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