Epilepsy Talk

Away I go, from Saturday 11/16 through Tuesday 11/19

November 16, 2019
12 Comments

You might remember the piece I wrote called “Prayer for a Cat,” in memory of our two-year old kitty who died of incurable peritonitis. (Who would think a cat could get peritonitis?)

Well her successor is ready to come home and take a place in our house and our hearts…


What Is Your Inspiration?

November 13, 2019
8 Comments

“I want people with epilepsy to know that there are ways in which they can play a role in their own recovery…”


Domestic Violence — When Love Goes Wrong

November 10, 2019
34 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


Your Hospital Rights…

November 3, 2019
23 Comments

Did you know?

1. You have the right to be treated with respect, whatever your condition, whatever your reason for being admitted to the hospital…


If You’re Thinking Of Getting Pregnant…

November 3, 2019
3 Comments

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case.

Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation.


Prescription Switching. Do You Know What You’re REALLY Getting?

October 30, 2019
34 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states.

It’s called “therapeutic substitution” and it happens when a patient is switched from to a cheaper medication in the same class of drugs.


Some Stress and Anxiety Solutions…

October 27, 2019
81 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


Epilepsy and Driving (A Small Rant)

October 21, 2019
51 Comments

For three months I was “benched”. With three more months until my driver’s license was restored.

The authorities said, if I didn’t “surrender” my license by XYZ date (with the neuro and cardiologist’s report) a sheriff was going to show up at my front door and haul me away!

So, now, not only did I have epilepsy, I was a prospective CRIMINAL with epilepsy.


How much is epilepsy costing you?

October 18, 2019
18 Comments

The fact that epilepsy is expensive is no secret.

The meds, medical care, the doctors’ visits, hospital bills, health costs, the injuries and finally, the cost of self-esteem.

The statistics are sobering but true…


12 THINGS YOUR DOCTORS WON’T TELL YOU…

October 13, 2019
70 Comments

Modern medicine can do miraculous things — but every test and treatment has a downside.

And your doctor may not disclose the dangers without prompting, a new survey finds.

Researchers surveyed 2,700 patients who’d recently decided whether or not to have surgery, take a medication, or undergo cancer screening.

Most reported their physician spent far more time talking up the benefits of each choice than explaining the risks.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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