Epilepsy Talk

How Creative Are YOU?

June 21, 2018
2 Comments

There can definitely be a creative side to the electrical mischief that epilepsy produces.  Some types of epilepsy can spark inspiration, enhance creativity and bring out the latent artist in you.  It can be as diverse as literature…poetry…painting…drawing…dramatics…architecture…philosophy…or physics…to name just a few.


Damaged Goods

June 17, 2018
21 Comments

There’s something liberating in being expected to fail. No expectations, no explanations.

After all, “you’ll never amount to anything,” you’re damaged goods.

So you’re free to fall on your face. Or reach for the stars. I did both…


Ode to a Doctor’s Visit…

June 10, 2018
38 Comments

They forget that we live 365 days or 8,760 hours a year with our illness…

We see them for four 30 minute visits or 2 hours in that year while we’re struggling…


Medical Malpractice: State by State

June 2, 2018
6 Comments

In “Doctors Behaving Badly,” Heisel tells of his year-long odyssey, investigating medical boards — state by state — across the country. 

His research tracks his discoveries on a Google map which shows where he’s been, along with the stories of each doctor’s malpractice.


Who’s at Fault?

May 29, 2018
21 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Doctors behaving badly…

May 23, 2018
33 Comments

We all have had at least one experience when a doctor either behaved badly or treated us in a way we didn’t feel we deserved.

“He could have spoken in a nicer tone,” you might mumble to your mother.

But what do you do when the experience with a doctor takes a sharper turn?

What if he doesn’t believe your symptoms or validate your experience?


NEWS: Drug Companies Hire Troubled Doctors As Experts

May 20, 2018
15 Comments

An investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused of professional misconduct, were disciplined by state boards or lacked credentials as researchers or specialists.


Syncope or Seizure?

May 16, 2018
18 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope.

Syncope (sing’-koe-pee), the medical term for fainting, is the sudden loss of consciousness and physical collapse due to lack of blood and oxygen to the brain. It can occur with or without warning — as an isolated event — or frequently, over time.

Since syncope can mimic the symptoms of some epileptic seizures — such as muscle twitching, shaking, convulsions and physical collapse — the confusion begins.


“Time Out”

May 11, 2018
21 Comments

I’ll be off the web from Friday 5/11 — Wednesday 5/16, spending some quality “together time” with my niece.

I’m sorry if any of my responses are delayed.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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