Epilepsy Talk

Medical Malpractice: State by State

June 2, 2018
6 Comments

In “Doctors Behaving Badly,” Heisel tells of his year-long odyssey, investigating medical boards — state by state — across the country. 

His research tracks his discoveries on a Google map which shows where he’s been, along with the stories of each doctor’s malpractice.


Who’s at Fault?

May 29, 2018
21 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Doctors behaving badly…

May 23, 2018
33 Comments

We all have had at least one experience when a doctor either behaved badly or treated us in a way we didn’t feel we deserved.

“He could have spoken in a nicer tone,” you might mumble to your mother.

But what do you do when the experience with a doctor takes a sharper turn?

What if he doesn’t believe your symptoms or validate your experience?


NEWS: Drug Companies Hire Troubled Doctors As Experts

May 20, 2018
15 Comments

An investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused of professional misconduct, were disciplined by state boards or lacked credentials as researchers or specialists.


Syncope or Seizure?

May 16, 2018
18 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope.

Syncope (sing’-koe-pee), the medical term for fainting, is the sudden loss of consciousness and physical collapse due to lack of blood and oxygen to the brain. It can occur with or without warning — as an isolated event — or frequently, over time.

Since syncope can mimic the symptoms of some epileptic seizures — such as muscle twitching, shaking, convulsions and physical collapse — the confusion begins.


“Time Out”

May 11, 2018
21 Comments

I’ll be off the web from Friday 5/11 — Wednesday 5/16, spending some quality “together time” with my niece.

I’m sorry if any of my responses are delayed.


Posted in Epilepsy
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The Trouble with AEDs

May 9, 2018
33 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Anti-Epilepsy Drugs and Osteoporosis – It’s Not Just a Women’s Disease

May 6, 2018
43 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


Seizures and Steroids

May 4, 2018
18 Comments

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance. Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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