Epilepsy Talk

Confessions of 30 years with epilepsy…

October 27, 2017
35 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah (which didn’t make me feel warm and fuzzy either).


Anti-Epilepsy Drugs and Their Side-Effects…

October 24, 2017
12 Comments

For people with epilepsy, Anti Epilepsy Drugs (AEDs) are the most common method used to control seizures. Although there are more than 40 different types of epilepsy, the right medication or combination of medications can usually control seizures.  However 30% of people are drug resistant, owing to either their gene factors or biological makeup.

The most important consideration in your treatment is identifying the exact type of epilepsy you have, therefore you may want to consult more than one doctor.

Medications prescribed will also depend on factors such as which side-effects you can actually tolerate, other illnesses you may have, and how the drug should be taken.

It may take several months before the best drug and dosage are determined for you. After all, medicine is more of an art than a science.  And finding the right combination can literally be a crap shoot.  I know for me and many others, it took many months to get it “right.”


Anti-Epilepsy Drugs and Osteoporosis – It’s Not Just a Women’s Disease

October 22, 2017
32 Comments

A research team consisting of epilepsy specialists and epidemiologists (persons who study the causes and control of diseases) reports on a study that answered an important but simple question:

Do anti-seizure drugs cause reductions in bone density?


Seizure Provoking Conditions

October 18, 2017
6 Comments

Few of these conditions will cause epilepsy itself…but many can lead to seizures. So consider this a definition of the possibilities…


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

October 10, 2017
20 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.


Epilepsy Related Conditions

October 8, 2017
32 Comments

In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…

Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders, along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.


Epileptic Synesthesia: What Is It?

October 3, 2017
10 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about.

And so, I set to find out exactly what this mysterious sounding condition was…


New Hope for Epilepsy Stem Cell Therapy

September 29, 2017
5 Comments

About stem cells: “They’ve been called magic seeds. They have the potential to cure disease, regenerate organs, and even prolong life. And they could completely alter the way we practice medicine” – Fortune Magazine

There are many exciting areas in epilepsy research. One topic of great interest is the use of stem cells to treat seizures.


Help Line

September 25, 2017
5 Comments

The secret here is the numbers 211.

Go to the website: http://www.211.org/. Where available, 211 allows people to give help and to get help.

211 can also give people who live in rural areas better access to health and human service information.


Posted in Epilepsy, Tips

Depression is quiet…

September 22, 2017
9 Comments

You would be surprised how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads out of fear of being judged, made fun of, seen as weak, or just not taken seriously.


« Previous PageNext Page »

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive notifications of new posts by email.

    Join 2,557 other followers

    Follow Epilepsy Talk on WordPress.com