Epilepsy Talk

Epilepsy in Twitter Times

December 17, 2019
14 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.


Epilepsy Foundation Was Targeted in Mass Strobe Cyberattack

December 17, 2019
25 Comments

Hackers sent images of flashing strobe lights to the foundation’s thousands of Twitter followers in several attacks.


Hospitals Criticized For Keeping Quiet On Charity Care…

December 12, 2019
42 Comments

“Too many nonprofit hospitals fail to adequately publicize their charity-care programs, two advocacy groups say in a survey report…


Is Epilepsy Inherited?

December 9, 2019
32 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!

So, even though the risk in families with epilepsy is higher than in the general population, most people with epilepsy do not have any relatives with seizures, and the great majority of parents with epilepsy do not have children with epilepsy.


Good news, there’s a new AED in town!

December 4, 2019
68 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Blood Tests May Help Diagnose Epilepsy

December 4, 2019
33 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.

Doctors at Stanford University, California, reveal that the level of the hormone prolactin may be indicative of the type of seizure and can be measured by this blood test.

The blood test which must be used within 10 to 20 minutes after a seizure, can identify generalized tonic-clonic seizures and complex partial seizures in both adults and older children, because the level of prolactin in the blood goes up.


What would you do if you knew you couldn’t fail?

November 29, 2019
9 Comments

All of us have dreams. Some become reality…and some stay in our imaginations.

For me, writing was my “dream”.  And it became a reality when I discovered a way I could write without starving.


Thanks for the Giving…

November 27, 2019
9 Comments

There’s so very much to be thankful for…


Hormonal Imbalances and Seizures in Women

November 25, 2019
66 Comments

Many women with epilepsy have asked their doctors about the connection between seizures and hormones, but not every woman has seen her concerns given the attention she’d hoped for.

Although it is not very well understood at this point, there are scientifically documented connections between seizures and hormones that not all physicians are educated about.

What are hormones?


Sodium and Seizures

November 22, 2019
11 Comments

You may think that sodium is a “bad guy” to be avoided or reduced at all cost, because too much is linked to high blood pressure.

But sodium is actually an essential electrolyte, and a deficiency can trigger seizures.

Seizures from low sodium levels are most likely to occur from a serious disease, acute infection or because you tried to run a marathon on a hot day.

One-time or isolated seizures from these causes don’t warrant a diagnosis of epilepsy.

However, epilepsy is sometimes misdiagnosed and you may have an underlying health condition that’s causing an electrolyte problem.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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