Epilepsy Talk

The Trouble with AEDs…

February 2, 2021
17 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Popular Painkillers — Depressing News

January 30, 2021
10 Comments

If you thought you were depressed before, wait till you finish this paragraph.

Researchers say popular painkillers could block the effects of antidepressants like Celexa, Zoloft, Paxil, Prozac or Lexapro…

This means YOU or a loved one.


Hormones and Epilepsy in Women and Men…

January 28, 2021
12 Comments

There’s a dynamic relationship between hormones, brain function, and seizures.

Whether you’re a woman or a man, sex hormones can influence the excitability of nerve cells in the brain and thus influence seizure control.

Hormones generally don’t cause seizures but can influence if or when they happen.


40+ Different Kinds of Seizures

January 23, 2021
7 Comments

When I was first diagnosed with epilepsy, there were two kinds of epilepsy. Grand Mal and Petit Mal. (Can you guess how old I am?)

Now, things are much more different and difficult. No more cut and dried.

So, please, if you have any additions, subtractions or corrections, feel free to chime in.

Because I don’t pretend to be an expert. In fact, this has certainly been a learning experience, from start to finish.

Here, to the best of my knowledge, are the 40+ different types of epilepsy.


Syncope or Seizure?

January 21, 2021
2 Comments

Studies have now confirmed what some doctors have long suspected — many young people who are given the diagnosis of epilepsy (or seizure disorder) apparently don’t have epilepsy at all.

Instead, they have a condition known as syncope.


Epileptic Synesthesia: What Is It?

January 17, 2021
16 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about. And so, I set to find out exactly what this mysterious sounding condition was…

First of all, Epileptic Synesthesia is pretty rare.

It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure.

Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement.

An example is the sensation of flashing lights, a taste, a feeling of heat rising, and a high-pitched whine.

Here are three other (rather alarming) examples:


Head Injuries and Seizures

January 15, 2021
17 Comments

How many of you have had a car accident…an abrupt fall…a physical assault?  If you are one of those people and you have suffered a head injury, the probability of seizure activity increases dramatically…

Seizures may develop immediately after an injury to the brain or may develop in delayed fashion, showing up months or years after the initial trauma.

Generally speaking, the risk of post traumatic seizures is related to the severity of the injury — the greater the injury, the higher the risk of developing seizures. Even mild to moderate injuries can result in seizures.


2021 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 13, 2021
1 Comment

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2021 evaluations, fifty pediatric centers were ranked for their ability to deal with serious neurological problems. Included were epilepsy, head trauma and brain tumors.


2021 Best Hospitals and Doctors for Psychiatry

January 10, 2021
2 Comments

The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2021 evaluations, thirty-nine hospitals were ranked for their ability to deal with serious psychiatric problems.


2021 Top-Rated Hospitals for Neurology & Neurosurgery

January 7, 2021
1 Comment

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top-ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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