Epilepsy Talk

Epilepsy — A Dirty Little Secret? 

April 28, 2023

Why would you say: “I have epilepsy.”

To be included — or excluded?

To be accepted — or rejected?

To be understood — or misunderstood?

Depression is quiet…

April 25, 2023

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.

What 2/3 of doctors don’t want you to see…

April 22, 2023

When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes. But doctors aren’t nearly as enthusiastic.

The idea of opening up doctor’s notes has been around for decades. Advocates figure that patient oversight will reduce medical errors and help patients be more engaged.

Patients have a legal right to see their records. But actually getting those notes — especially those that doctors take during a visit, can be painfully slow (and expensive!)

Epilepsy and Diabetes — Confusion or Common Cure?

April 18, 2023

A seizure can be quite serious and can be a scary experience for not just the person experiencing it but for the people around them.

While seizures are caused due to many reasons, one of the prime reasons for a seizure to occur is when people have epilepsy.

Among those types of seizures are diabetic seizures, which can sometimes turn into an emergency quite quickly.

What most offends YOU about how people treat epilepsy?

April 14, 2023

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.

Brain Surgery — Questions to Prepare Yourself

April 11, 2023

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.

More people are smoking marijuana than cigarettes!

April 8, 2023


With the legalization of smoking cannabis both for medical and recreational use, it’s clear marijuana’s time has come.

The jury is no longer out. States have been weighing in. And the answer has been a resounding : “Yes”.

Nearly half of U.S. adults have tried marijuana. A massive shift that took place over just a few years.

7 secrets for relaxation…

April 3, 2023

Feeling stressed, overwhelmed, and under water? Frazzled to the max?

You’re certainly in good company!

The challenges and demands of day-to-day life are overwhelming. Not to mention the triggers and seizures that can be a consequence.

So what can we do about it?

Did you know Snow White’s “Dopey” had epilepsy?

March 31, 2023

No he wasn’t dumb…slow…or retarded. “Dopey” had a condition known as Angelman syndrome (AS).

Weird epilepsy triggers…

March 28, 2023

Here’s a list of uncommon epilepsy triggers you may have experienced or know about.

Feel free to add to this list of the weird and the unknown…

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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