Epilepsy Talk
TNS vs. VNS – NO SURGERY!
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The first Vagus Nerve Stimulator (VNS) was implanted in 1988, as a therapeutic option for medically intractable epilepsy, when elective epilepsy surgery was not appropriate.
As the number of implanted vagus nerve stimulators grows, so does the need to remove or revise the devices.
Which is a little tricky, because of the spiral stimulating electrodes, wrapped around the nerve. Especially if the VNS treatment has proven ineffective.
And of course, what goes in, must come out. Anyway you look at it, there’s more surgery involved.
The up side to having a VNS is better seizure control.
The down side is discomfort, headaches, temporary hoarseness and shortness of breath.
Auras without Seizures
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Do any of these sensations sound familiar to you?
Suddenly you’re sweating, flushed, become pale or have goosebumps.
Your stomach feels queasy, like you’re going to puke.
There’s a foreboding or fear that something awful is about to happen.
Tags: aura, deja vu, distortion, foreboding, no seizure, odd sensation, perceptions, simple partial seizure, spatial, visual
CBT — When you feel that you’ve hit rock bottom…
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Sara had a brain surgery gone wrong. She spent all of her savings and all of her resources on rehab. One year later, she went home, only to be able to toilet herself and say “dog”. She was lost.
Both physically and mentally. You might say she was “a basket case”.
Sandy was in a near fatal car accident. She survived, but just barely. After her physical healing, she said she couldn’t put two sentences together.
Then she heard about CBT.
Tags: anxiety disorders, behavioral therapy, behaviors, CBT, Cognitive Behavioral Therapy, cognitive therapy, control, coping strategies, depression, feelings, Panic Attacks, phobias, post-traumatic stress disorders, problem-solving, psychiatric medications, severe mental illness., thoughts
Epilepsy And Complementary Medicine…
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Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.
There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)
Tags: acupressure, acupuncture, aromatherapy, biofeedback, chiropractic care, Complementary Alternative Medicine, essential oils, herbal medicine, Homeopathy, massage, meditation, Naturopathy, Orrin Devinsky, reflexology, relaxation techniques, seizure control, stress reduction, tai chi, yoga
Your birthday contribution would mean so much to me…
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For my birthday this year, I’m asking for donations to the Epilepsy Foundation Eastern PA – EFEPA.
I’ve chosen this nonprofit because their mission is near and dear to my heart, and I hope you’ll consider contributing as a way to celebrate with me.
Tags: birthday contribution, donations, Epilepsy Foundation Eastern Pennsylvania, mission
Brain Surgery Alternatives
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“It’s not brain surgery.” And it doesn’t have to be.
There are a host of epilepsy procedures that are minimally invasive.
For example…
Tags: biofeedback, Brain Surgery Alternatives, Cell Transplantation, counseling, Deep Brain Stimulation, gamma knife surgery, Gene Therapy, Homeopathy, Hormone Imbalances, laser surgery, minimally invasive, Naturopathy, Transcranial Magnetic Stimulation, trigeminal nerve stimulation, Vagus Nerve Stimulation
A New Life – From Epilepsy to Brain Surgery
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Leanne Chilton, triumphant author of “Seizure-Free: From Epilepsy to Brain Surgery, I Survived and You Can, Too!” is a proud survivor and has a wealth of wisdom to share.
“We can’t control the future,” she says. “But we can make every attempt to improve the quality of our lives.”
Ode to Epilepsy
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It strikes my head a hundred times…
It strikes my soul as many…
It strikes each thought I have…
Tags: believe, confidence, consciousness, Epilepsy, head, heart, sense, sensibility, soul, thought
12 Things Your Doctor Won’t Tell You…
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Modern medicine can do miraculous things — but every test and treatment has a downside.
And your doctor may not disclose the dangers without prompting, a new survey finds.
Researchers surveyed 2,700 patients who’d recently decided whether or not to have surgery, take a medication, or undergo cancer screening.
Most reported their physician spent far more time talking up the benefits of each choice than explaining the risks.
Tags: alternatives, benefit, choose wisely, cost, disclose dangers, insurance, misuse, overuse, quotas, referrals, risks, side effects, underuse, unnecessary tests
Epilepsy and Brain Surgery — The Basics
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Since there so many different types of brain surgeries — and questions — I decided to learn about them and share my findings with you.
Surgery is most commonly done when tests show that your seizures originate in a small, well-defined area of your brain that doesn’t interfere with vital functions like speech, language or hearing.
In these types of surgeries, your doctor removes the area of the brain that’s causing the seizures.
If your seizures originate in a part of your brain that can’t be removed, your doctor may recommend a different sort of surgery in which surgeons make a series of cuts in your brain.
These cuts are designed to prevent seizures from spreading to other parts of the brain.
Although many people continue to need some medication to help prevent seizures after successful surgery, you may be able to take fewer drugs and reduce your dosages.
The type of surgery used depends on the type of seizures and the area of the brain where the seizures start. The surgical options include:
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