Epilepsy Talk

Epilepsy — at what cost?

July 2, 2021
26 Comments

Here’s a look at how epilepsy can affect your pocketbook. And why it’s called the “orphan disease”.


I Am Not a Camel … but I Do Have Epilepsy

June 30, 2021
1 Comment

On the topics-that-are-fun-to-disclose-in-the-workplace-o-meter, epilepsy ranks somewhere between ‘I’ve been embezzling candy from the vending machine for the past 15 years’ and ‘I am actually a camel.’


Anger and Epilepsy: WHY ME?

June 27, 2021
25 Comments

Suddenly, you’re feeling edgy. Lashing out at loved ones for no reason at all. It’s not anybody’s fault. It’s that old familiar enemy. Epilepsy. Again.

Why me? Why now? It’s not fair.


Epilepsy Generics: Yes, No or Maybe So?

June 24, 2021
17 Comments

Almost everybody considers generic drugs a no-brainer. You get significant savings without any (noticeable) change in your treatment.

But they’re not epileptic. And they don’t walk the tightrope of a delicate neurological balance.


Doctors Distracted by Electronic Devices…

June 22, 2021
4 Comments

Do you know what happens during surgery?

Cut…open…correct…sew.

Maybe some background music. Hip if the doctor likes that. Or classical.

Well, not exactly.

You might be surprised. Or horrified to learn the truth.


A Neurologist Talks About His Own Epilepsy…

June 20, 2021
14 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


What Is the FDA Thinking?

June 17, 2021
24 Comments

Getting the FDA to retract a decision is like getting the toothpaste back into the tube, once it’s been squeezed out.


What kind of seizures do you have?

June 15, 2021
25 Comments

I’ve got to admit, my seizures were all over the place. Absence, drop, tonic-clonic…

I never knew whether I was coming or going.


Headaches and Seizures: Can You Prevent Getting Them?

June 13, 2021
21 Comments

From RSC Diagnostics, an article for anyone who may have one of the four types of epilepsy headaches:

Headaches can happen before or after a seizure, even acting as a warning sign that a seizure is coming on.

This article examines the four types of headaches that are associated with epilepsy.

And even more importantly, possible treatment options.

http://www.rscdiagnosticservices.com/blog/headaches-and-seizures-can-you-prevent-getting-them

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Treating depression is no laughing matter. Or is it?

June 10, 2021
12 Comments

When you think of treating depression, your mind often goes to antidepressant pills, pills, and more pills. Sometimes all for naught.

According to research published in the World Journal of Psychiatry, up to 15% of people diagnosed with depression don’t respond to traditional medication.

And around 35% say that antidepressants only offer partial relief from widely available treatments, highlighting the need for medication that works in different ways.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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