Epilepsy Talk

Your Thyroid…What Everyone with Epilepsy Should Know

September 3, 2017
8 Comments

Touch your neck, right above your collarbone, and you’ll find a little gland called your thyroid.  It only weighs an ounce, yet this thyroid’s hormones control your metabolism.

When those hormones are balanced, everything is fine.

But if your thyroid makes just a little less or more than you need…it could cause havoc, both with how you function and the effectiveness of your AEDs.


What Most Offends YOU About How People Treat Epilepsy?

August 28, 2017
93 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Is Epilepsy Inherited?

August 23, 2017
20 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!


Violence and Epilepsy

August 19, 2017
21 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.” Which didn’t exactly help.

In later editions of his novel, Crichton softened his stance with a postscript, but many physicians and laymen still truly believe that those with epilepsy are dangerous and potentially violent people.


Health Insurance — No-Cost & Low-Cost

August 17, 2017
6 Comments

These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…


Prescription Switching. Do You Know What You’re REALLY Getting?

August 14, 2017
23 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states…


7 Myths About Medication — and the Facts Behind Them

August 10, 2017
16 Comments

From The Cleveland Clinic: By Family Health Team

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Rewiring the Brain with Cell Transplantation

August 9, 2017
5 Comments

Cell transplantation is an emerging approach for treating drug resistant epilepsy.

Regenerative medicine such as this, is a relatively “simple” process in that stem cells are often cultured from the patient’s own tissue, then processed and transfused back into the body.


Laser Surgery — Breakthrough Epilepsy Treatment!

August 7, 2017
4 Comments

Revolutionary laser surgery — a safer, less invasive alternative to brain surgery as we know it — has slowly been achieving success with brain tumor patients.

Instead of the more traditional craniotomy, in which a bone flap is removed from the skull, neurosurgeons are using MRI-guided laser technology to destroy lesions in hard-to-access regions of the brain.


Deep Brain Stimulation (DBS) — Reducing Seizures By As Much As 50%

August 4, 2017
2 Comments

Deep brain stimulation (DBS) has been called “a promising therapy for epilepsy,” as reported by the BBC. According to the article, it’s designed for the considerable number of patients suffering from medically refractory epilepsy who are not candidates for resective brain surgery.

This seizure-interrupting device, also called a responsive neurostimulator system, is for those with temporal lobe epilepsy, bi-temporal epilepsy, and neocortical epilepsy.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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