Epilepsy Talk

Anger and Epilepsy: WHY ME?

April 8, 2019
30 Comments

Suddenly, you’re feeling edgy.

Lashing out at loved ones for no reason at all.

It’s not anybody’s fault. It’s that old familiar enemy.

Epilepsy. Again.

Why me? Why now?

It’s not fair.


The Isolation of Epilepsy

April 4, 2019
27 Comments

You’re reluctant to go out.  Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?  What will people do?  What will they think of me?”

Those and many other self doubting questions run through your mind.


Depression is Quiet…

April 1, 2019
70 Comments

You would be surprised how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads out of fear of being judged. Made fun of. Seen as weak. Or just not taken seriously.

Anyone can fall victim to it. And then there’s the lie. “I’m fine, don’t worry.

”No one can detect it. Sometimes, even yourself.


FREE Legal Resources

March 27, 2019
28 Comments

I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care. 

But here are six resources where you can find FREE legal aid and assistance.

It’s tricky, because each state has its own laws. 

But these organizations can help guide you to the resources available in your area.  (The other option is to Google your local Legal Aid office.)


Epilepsy — Applying for Social Security Disability Benefits — Straight from the Source

March 24, 2019
15 Comments

If you suffer from epilepsy and wish to qualify for Social Security Disability benefits, you must be able to prove that you meet the criteria of the Social Security Administration (SSA)’s Blue Book listing for the condition.

The Blue Book is a guideline created by the SSA for disability adjudicators to follow when approving or denying disability claims.

A copy of the Blue book can be found here: http://www.ssa.gov/disability/professionals/bluebook

If you can prove through medical documentation that you meet the criteria of a listing, it will increase your chances of receiving an approval of benefits during the initial stage of the application process.


Medical Care — Free or Reduced Cost

March 22, 2019
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Believe it or not, there are still places where you can get FREE or reduced cost medical and dental care. Plus assistance with your prescriptions. Just read below and find the resources nearest to you…


Hospital Bill Relief for the Uninsured

March 21, 2019
9 Comments

One of the best-kept secrets in the healthcare industry is that there are financial and charitable aid programs available to lighten the staggering financial and emotional burden caused by medical expenses. 

Believe it or not, that financial aid department can become your best friend. 

They have the power to make your bills more manageable…consolidate them…discount them…and work out a payment plan at reduced cost. 

But first, you have to ask…


Epilepsy — Top Financial and Medical Assistance Programs

March 19, 2019
1 Comment

With so many people at the end of their resources, we could all use a helping hand.

Below is my attempt to research viable resources for financial and medication aid.


Epilepsy & Migraines — Kissing Cousins

March 18, 2019
17 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.

The International Headache Society (IHS) criteria divides headache disorders into two main groups, with similarities to groups of epilepsies:


How Are Your Meds Affecting You?

March 14, 2019
39 Comments

They’re necessary, but not necessarily nice. And every med has its own side-effects. Just as different people experience different difficulties.

Here‘s the low-down on the possible side-effects of your drugs and others. 

Some might sound painfully familiar…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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