Epilepsy Talk

Domestic Violence — When Love Goes Wrong

May 16, 2017
22 Comments

Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


Epilepsy and Romance — Getting Personal

May 12, 2017
14 Comments

Romance is so many different things to different people.

But to me, intimacy requires acceptance, faith and loyalty.

The question is; how do you get there?

Especially when you have epilepsy?


Sex and Epilepsy — The Ultimate Challenge

May 8, 2017
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It’s the $64,000 question.

Can I have sex with epilepsy, all the AEDs, and side-effects?

The answer is yes.

If you’re willing to be flexible.


A Menu of Epilepsy Auras

May 2, 2017
17 Comments

The fact is: There are probably as many or more types of auras as there are types of epilepsy…

Auras can last from several seconds to as long as an hour, and can sometimes end with feelings of extreme tiredness, weakness, heart palpitation, sweating and warmth throughout one’s body.

And some people can experience auras and have no seizure(s).

Each and every person’s aura patterns are different. They vary significantly between individuals.


Epilepsy & Migraines — Kissing Cousins

April 27, 2017
27 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.


Is Epilepsy Inherited?

April 23, 2017
21 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.


28 New Epilepsy Medicines In Development

April 17, 2017
14 Comments

A newly-released report from Pharmaceutical Research and Manufacturers of America (PhRMA) has revealed that 28 new medications are in development to treat epilepsy and seizures.

But that’s just the tip of the iceberg.

These 28 new drugs are among nearly 420 new ground-breaking medicines in progress to treat neurological disorders.


Where’s The Funding? Epilepsy As An Orphan

April 12, 2017
18 Comments

There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Embrace — A Seizure Smartwatch With Style

April 6, 2017
22 Comments

Embrace makes it very easy to monitor physiological stress, sleep and physical activity.

You can check your entire day in a glance in a way that is easy to understand.

If you push yourself too much, the Embrace will gently remind you with a vibration that you need some time to recover. You can customize it to suit your behavior and needs.


Kindling — Using Seizures to End Seizures

April 3, 2017
8 Comments

When you think of “kindling,” think of confusing. Controversy. Cure.

No, it’s not the little twigs for a bonfire!

But the name “kindling” was inspired by a log fire.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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