Epilepsy Talk

Hooray for Forums! 

June 5, 2022
10 Comments

I never met anyone with epilepsy until I was 29. And that was a best friend of my husband’s. (Which may explain why my husband didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end…


Do you consider yourself as “disabled” or a “person with disabilities”?

May 31, 2022
24 Comments

It’s an interesting and provocative question.

One that author Erica Mones brings up in her new article: “I Refer to Myself as Disabled, Because My Disability Is Central to Who I Am.”

How do you feel?


Truth is stranger than fiction

May 28, 2022
13 Comments

I call epilepsy a “stealth disease”, because it’s difficult to imagine how so few people know about a “silent” condition that affects so many.

For example, few people know:


New hope for drug resistant epilepsy

May 26, 2022
12 Comments

Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy.

Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.

Unfortunately, traditional antiepileptic drugs (AEDs) don’t seem to prevent or reverse drug resistance in most patients.

However, some new add-on AED therapies have shown as much as 50% in seizure reduction.


Antidepressants and epilepsy…

May 22, 2022
7 Comments

For a long time, depression has been thought to be a complication of epilepsy.

“People with a history of depression have a 3 to 7 times higher risk of developing epilepsy. This kind of information is forcing us to take a second look at the interaction between depression and epilepsy” said Dr. Andres Kanner, a Professor of Clinical Neurology and Director of the Comprehensive Epilepsy Center of the University of Miami, Miller School of Medicine.


Time out from Wednesday 5/18 – Sunday 5/22

May 18, 2022
4 Comments

Be well and please, take care of one another.


What Part of Your Epilepsy Do You Hate Most?

May 16, 2022
29 Comments

Compared to others, I know I’m very lucky, but the concussions really stink.

And the anxiety never goes away.


Is it a headache, an aura, a migraine, a seizure, or perhaps ALL four!

May 11, 2022
3 Comments

If you’ve had a migraine with auras that triggered an epileptic seizure, you might have experienced migraine-induced epilepsy.

Another name for this phenomenon is migralepsy.

Scientists have debated the existence and terminology of this phenomenon for some time.


Say good-bye to the miserable world of migraines…

May 11, 2022
3 Comments

Your head is throbbing, pulsing, pounding, light is blinding, you want to puke, you can’t think straight. Sound familiar?

Welcome to the miserable world of migraines.


Epilepsy & Migraines — Kissing Cousins

May 7, 2022
6 Comments

A strong relationship between migraines and epilepsy has long been suspected.

But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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