Epilepsy Talk

Epilepsy And Sleep Apnea — A Dangerous Duo

February 3, 2018

Almost a third of people with epilepsy may suffer with undiagnosed sleep apnea, a sleep disorder which is dangerous because of the possible serious consequences.

Basically (as you probably already know), sleep apnea is characterized by abnormal pauses in breathing or instances of abnormally low breathing during sleep.

Each pause in breathing, called an apnea, can last from at least ten seconds to minutes, and may occur 5 to 30 times or more an hour, causing partial airway obstruction.

Move Over VNS…There’s A New Guy in Town!

January 28, 2018

What if I were to say there’s a new nerve stimulation therapy that requires NO SURGERY and reduces seizures among those who are drug resistant by about 40 percent?


The difference between this experimental device and the VNS is that the skin is never penetrated and the TNS is powered by an external device about the size of a large cell phone.

12 Recipes For Happiness — Even If You Have Epilepsy!

January 23, 2018

“No one is in control of your happiness but you; therefore you have the power to change anything about yourself or your life that you want to change.” — Barbara de Angelis

We all know that epilepsy is no day at the beach. You may feel depression, anxiety, fear, isolation, anger, or a whole host of other things, too may to mention.

But, if you dig deep into yourself, perhaps there’s a few things you can do to relieve those feelings.

Here are some ideas…

The Stigma of Epilepsy…

January 14, 2018

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]

Although these laws are no longer in effect, the underlying social divisions that they have created in the past thirty years are still present today.

2018 Top-Rated Hospitals for Neurology & Neurosurgery

January 11, 2018

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top-ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.

2018 Patient Recommendations for TOP Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors

January 6, 2018

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.

2018 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

January 4, 2018
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The U.S. News & World Report’s annual survey of hospitals is considered the pre-eminent source for excellence.

For the 2018 evaluations, fifty pediatric centers were ranked for serious neurological problems. 

The Promise of the New Year…

December 31, 2017

The new year falls upon us…

With hopes of health, dreams of joy…

Wishing you a blessed Christmas…

December 24, 2017

May all your hopes come true…

May you be seizure-free…

Who is Your Personal Hero?

December 19, 2017

For me, it was my Grandfather, who believed in me completely and thought that I could do anything I set out to do.

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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