Epilepsy Talk

The Sacred Disease. A Movie You Can Not Afford to Miss… | November 28, 2010

Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.

Although epilepsy is more common than Parkinson’s disease, muscular dystrophy, cerebral palsy, and multiple sclerosis combined, it receives less funding. In comparison to autism, multiple sclerosis, Alzheimer’s, and Parkinson’s which receive $200 – 400 in research funds per person – epilepsy receives only an average of $35 per person. Additionally, the majority of all epilepsy research is focused on medications even though only two-thirds of the epilepsy population responds to anti-epileptic drugs.

Featuring interviews with historians, top medical researchers, and people living with epilepsy, The Sacred Disease filmmakers hope to increase awareness, encourage viewers to act and bring the epilepsy community closer to finding a cure.

Matt Webb, director, co-produces The Sacred Disease with Tiffany Webb and Chris Roach.

Posted in Epilepsy, Tips
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4 Comments »

  1. Wow! Only $35? That is incredible! I knew it was low, but I had not realized how pathetically low this research funding was!

    Like

    Comment by findingstrengthtostandagain — November 29, 2010 @ 8:21 AM

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  2. The film itself needs funding, they may never finish anything beyond the trailer. I think that so far they have raised a few hundred dollars. 😦

    Like

    Comment by Arthur — November 30, 2010 @ 3:32 AM

    Reply

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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