Epilepsy Talk
What Is your Favorite Joke — Part #2
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Well folks, it looks like you took me seriously. Which just goes to show: Who says people with epilepsy don’t have a great sense of humor?
So, bring it on, so we can start with a laugh each day.
TLE — Important New Research!
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In the study which appears online in the Annals of Neurology, neurologist and neuroscientist Dr. Tallie Z. Baram and her colleagues, explained: “”Understanding how previous brain infections, seizures or injuries can interact with the cellular machinery to cause epilepsy is a crucial step toward designing drugs to prevent the process. We don’t want to just treat people with epilepsy. We hope to develop medicines that will prevent epilepsy from occurring — and influence the lives of millions of people around the globe.”
Epilepsy Brought Alive By Three Amazing Talents
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Maggie Mendus, Tiffany Webb and Terry Tracy all have one thing in common: Epilepsy and a rare, inspiring talent. Through poetry, fiction and film, they take us on a jorney of what it is like to live through seizures with astounding depth and feeling.
Don’t miss any of these three creative break-throughs.
Adult Epilepsy…Ground-Breaking New Research on Origins
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In a ground-breaking new study which appears online in the Annals of Neurology, neurologist and neuroscientist Dr. Tallie Z. Baram and her colleagues, discovered:
Tags: adult epilepsy, ground-breaking, new research, prevent epilepsy
Protect The Medicaid Program…NOW!
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Both the US Senate and House are back in DC and in session this week. Now is the time to ask them to reject cuts or changes to Medicaid!
Checking charities and their accountability
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Since it is so difficult to figure out where our donations are going and we don’t want to give up on giving, I thought I’d tell you about two very reliable sites that can give you the TRUE facts on your chosen charity. They are: The Charity Navigator and Charity Watch — part of the American Institute of Philanthropy.
Both are well-trusted, responsible guides to help you in your contribution decisions. (Fortunately The Epilepsy Foundation is a 3-star charity, according to the Charity Navigator and it’s also ranked as a top-rated charity by Charity Watch.)
Tags: Charity Navigator, Charity Watch, reliable guides for giving
Do You Know Where Your Charity Dollars Go?
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These days, because of Federal budget cuts, virtually EVERY non-profit is desperately in need of funds.
But before you make your donations, you have to ask: Not how much money you’re giving, but WHERE it’s actually going. How do you know where your charitable dollars are being spent?
Epilepsy Foundation Applauds EEOC for New Rules Under the ADA
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When I went to the Philadelphia “Town Hall” meeting for the EEOC, it was very impressive. The room was packed. There was a huge presentation board and someone speaking sign language for the non-hearing. There were peole of all kinds of disabilities on the ADMINISTRATION BOARD — non-seeing, wheelchair bound and others.
In other words, the EEOC doesn’t just walk the walk. They talk the talk!
Just to prove it, the EFA announced newly issued regulations from the Equal Employment Opportunity Commission for implementing Title I of the Americans with Disabilities Act Amendments Act (ADAAA). Title I protects people with disabilities, like epilepsy, from discrimination in the workplace…
Why 3D TVs are NOT for me…
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Here’s the good news and the bad news…
The GOOD: You can buy a 3D TV without using the 3D function.
The BAD: I threw up watching Avatar and I’m not even photosensitive!
I guess you get the message.
Watching 3D can cause other problems in addition to causing seizures. They include: altered vision, lightheadedness, dizziness, eye or muscle twitching, confusion, nausea, loss of awareness, convulsions, cramps and disorientation. (So I’m not such a wuss.)
Epilepsy Awareness Brainstorm!
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This is about awareness, not fundraising. Although if funds came out of it, that’s ok!
Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.)
Nothing to do with the government, but probably with some ties or support info from the EFA.
We could have informal talks, appealing to religious organizations, local schools and colleges, neighbors, friends. Even Facebook pages — for those who have them…
Tags: colleges, epilepsy awareness, friends, neighbors, religious organizations, schools, talk to
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