Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.)
Nothing to do with the government, but probably with some ties or support info from the EFA.
We could have informal talks, appealing to religious organizations, local schools and colleges, neighbors, friends. Even Facebook pages — for those who have them.
It’s a matter of letting them know who we are, what epilepsy is and raising their consciousness a bit.
I think you’ll agree, it’s certainly worth a try!!!