Epilepsy Talk

Epilepsy Awareness Brainstorm! | March 7, 2011

This is about awareness, not fundraising. Although if funds came out of it, that’s ok!

Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.)

Nothing to do with the government, but probably with some ties or support info from the EFA.

We could have informal talks, appealing to religious organizations, local schools and colleges, neighbors, friends. Even Facebook pages — for those who have them.

Tell them our own story or Cheers for Charlie! Give them copies of the article The Stats and Facts of Epilepsy and/or Epilepsy Myths Live On…

It’s a matter of letting them know who we are, what epilepsy is and raising their consciousness a bit.

I think you’ll agree, it’s certainly worth a try!!!


  1. I think it’s a fantastic idea, Phyllis! I’m definitely on board.


    Comment by kim cassidy — March 7, 2011 @ 7:00 PM

  2. That would make it Cheer’s for Everyone! I like that title better. There are so many of you on the front lines in the fight for awareness and I applaud you all.


    Comment by Charlie — March 7, 2011 @ 9:29 PM

  3. Well, as soon as I think up a letter, I’m going to stuff the 68 mailboxes in my development. That, at least, is a start! 😉


    Comment by Phylis Feiner Johnson — March 7, 2011 @ 11:23 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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