Epilepsy Talk

Epilepsy Brought Alive By Three Amazing Talents | June 30, 2011

These three creative women have one thing in common: Epilepsy. But their talents are each unique, far-reaching in scope with compassion, insight and astounding depth and feeling.

Maggie Mendus’ “Broken Consciousness: Reflections of an Epileptic” http://www.amazon.com/Broken-Consciousness-Reflections-Maggie-Mendus/dp/1462001793/ref=cm_cr_pr_product_top takes us on a poetic journey of what it is like to have seizures…with grit, bravery, sensitivity and finally, hope.

I have a bundle of favorites: War, Tonic-Clonic Seizure, Decrescendo, Seizure, Resting, Brain Storm, Looking Ahead, Tension (one of my very favorites) and A Note to You.

Tiffany Webb’s “The Sacred Disease” http://www.sacreddisease.com/ is a film that covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. It displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.  This is a movie you can not afford to miss…

And finally, Terry Tracy’s “A Great Place for a Seizure” http://www.amazon.com/Great-Place-Seizure-Terry-Tracy/dp/1453834702/ref=tmm_pap_title_0 is a novel with an engaging balance of humor, insight and sensitivity, drawing the reader into a tale that travels three continents over thirty years, exploring the power of the individual and the choices we make that decide who we are.

Don’t miss the reviews and the chance to be touched to the very core of your heart.


  1. Phylis, thank you. What a delightful surprise to see this. I am humbled and complimented that you would create a thread like this and include me. I could never have expected my book to have the impact it is having. I credit you in large part.

    Tiffany and Terry, I have checked out your websites, and I’m glad to be in your good company.

    This has “made my day.”


    Comment by Maggie — June 30, 2011 @ 10:55 PM

  2. Did you get the email I sent to the three of you, noting the websites I posted the article on?


    Comment by Phylis Feiner Johnson — June 30, 2011 @ 11:20 PM

  3. Oh yes, and thank you for that. I’ve checked out Tiffany’s and Terry’s websites as well. As Terry said, “Maybe our paths will cross someday.” I hope so.

    Thank you for your fantastic promotion of people like us who want to encourage others who have E. You’re like the engineer on a train, steering and connecting people, person-to-person, place-to-place.

    And those websites, Phylis, thank you again for moving us out into deeper waters where our work might be noticed. I can’t thank you enough.


    Comment by Maggie — June 30, 2011 @ 11:58 PM

    • Out of the goodness of Phylis’s heart, she will only accept 10% of the residuals, LOL!


      Comment by mkfarnam — July 1, 2011 @ 12:58 AM

      • Hey Mike, how about 25%?

        Did you see the new poem by Rick’s daughter Teresa? It really is quite lovely.

        Although she doesn’t have epilepsy (Rick does) she does bring music to the soul.


        Comment by Phylis Feiner Johnson — July 1, 2011 @ 12:55 PM

  4. Phylis, I read Mary Ann’s comment about “too bad a percentage won’t be given to EFA,” and I hope you will be able to tell her my reply, as I had trouble sending it. When I sell my book this November at the annual conference of the Michigan Epilepsy Foundation, I WILL be donating a percentage of the proceeds to the E.F. of Michigan. I want her to know that. Thanks.


    Comment by Maggie — July 16, 2011 @ 5:25 PM

  5. Where is Mary Ann and on what website — or thread — did you find her?


    Comment by Phylis Feiner Johnson — July 16, 2011 @ 6:03 PM

  6. Oh, I just saw this. I’ll have to go searching, as I don’t remember. She was someone from the E.F.A.


    Comment by Maggie — July 22, 2011 @ 4:00 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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