Epilepsy Talk

Checking charities and their accountability | May 7, 2011

Since it is so difficult to figure out where our donations are going these days and we don’t want to simply give up on giving (they desperately need our help), I thought I’d tell you about two very reliable sites that can give you the TRUE facts on your chosen charity. They are:  The Charity Navigator  http://www.charitynavigator.org/

Also Charity Watch — part of the American Institute of Philanthropy  http://www.charitywatch.org/azlist.html

Both are well-trusted, responsible guides to help you in your contribution decisions.  (Fortunately The Epilepsy Foundation is a 3-star charity, according to the Charity Navigator and it’s also ranked as a top-rated charity by Charity Watch.)


  1. Phylis,

    One time I really needed money for my medicines. I called up the Epilepsy Foundation and asked if they would help me.

    They said: ” We want you to give us money, we do not give it to people who need medicines.” That is a quote, I have never forgotten it and I have never given them any money.

    The Epilepsy Foundation uses the money to do research for epilepsy. BTW, how much money does the top people in the Foundation get of the money that is given. I am sure that they are paid, as well. Are they working for free and giving their time for the work that they do?


    Comment by ruth brown — May 7, 2011 @ 6:37 PM

  2. In our local office, only 4 out of about 10-15 people are paid staff. The rest of us volunteer.

    For a breakdown of expenses and operating costs, check out the Charity Navigator and the Charity Watch links up above for the exact amounts. (I think 77% goes to the charitable work and research.)

    What they did/said about the medications was UNFORGIVABLE.


    Comment by Phylis Feiner Johnson — May 7, 2011 @ 8:17 PM

  3. Hi Phylis,

    I looked up the two charities. I did not find much. I must have been looking at the wrong site. What site in Charity Navigator do I need to look up? There are a lot of things to look up.

    What I found under Epilepsy Foundation was:

    Charity Navigator

    Not another moment lost to seizures

    Health, Diseases, Disorders, and Discipline.

    In Charity Watch I found a lot of charites that the Epilepsy Foundation has.

    They must not have had charites when I asked for money. That was a long time ago.

    I am glad that you told me that most are volunteers. I did not know that. I spoke without that knowledge. I should look up things before I critize.

    I am very sorry for speaking without that knowledge.


    Comment by ruth brown — May 9, 2011 @ 2:51 AM

  4. Here’s the link for the EFA on Charity Navigator.


    It basically breaks down expenses.

    Charity Watch gives the EFA an A+, but I couldn’t find the particulars.

    No need to apologize, but our organization and probably all of the others, are “staffed” with volunteers, who also do a good deal of the work. Except where professional knowledge is needed. And then, even nurses and doctors volunteer!!!


    Comment by Phylis Feiner Johnson — May 9, 2011 @ 12:09 PM

  5. […] Checking charities and their accountability « Epilepsy TalkMay 7, 2011 … (Fortunately The Epilepsy Foundation is a 3-star charity, according to the Charity Navigator and it’s also ranked as a top-rated charity by Charity … You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed. « Doelpunten oranje […]


    Pingback by Epilepsy charities | Blackbadgerinc — March 31, 2012 @ 7:22 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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