Epilepsy Talk

Death, depression and AEDs

June 25, 2023
3 Comments

“Suicide Risk from 11 Anti-Epilepsy Drugs,” headlines blared across the country.

But we’re still here.

Was it sensationalism by the journalists, irresponsibility by the pharmaceutical industry or laxness of the FDA?

The answer is none of the above. And, by the way, they forgot to include anti-depressants.

At best, I’d call it a misunderstanding. At worst, I’d call it manipulation.


A chief of surgery offers insider tips to finding the right surgeon 

June 24, 2023
1 Comment

On Sunday morning, my neighbor Carolyn knocked on my front door holding a basket of carbs and said, “I need to have my gallbladder out. I’ve never had an operation and have no idea how to find a surgeon to do my surgery. I don’t want to die. I brought you some scones.”

Carolyn brings up a valid point — if you’ve been blessed with reasonably good health, you probably don’t have a surgeon’s number on speed dial. Therefore, the bigger question is, in the unfortunate event that you need one, how do you find the best surgeon for your medical condition?


Is your epilepsy inherited?

June 21, 2023
6 Comments

Just because you have a parent, sibling, cousin or aunt who has epilepsy doesn’t necessarily mean you’ll have it also.

In fact, if you have a close relative with epilepsy, the chance of you having epilepsy is only about 2-5%, depending on the specific type of epilepsy.

The risk in the general population is about 1-2%.

On the other hand, there is a 92-98% chance for the close relative of someone with epilepsy to NOT have the same condition!


What’s the worst accident you’ve ever had?

June 13, 2023
18 Comments

The worst accident I ever had was the one that caused my seizures.

I was at an ice rink, speed skating, when some jerk put his foot out. (A real funny joke.)

Into the boards I went, flying over the ice.


Posted in Epilepsy
Tags: ,

Turning the BIG 7-0!

June 8, 2023
18 Comments

They say 70 is heavenly…


Posted in Epilepsy

Vagus Nerve Stimulation — The Secret Is In Your Breathing!

May 26, 2023
1 Comment

Several components contribute to the profound influence of deep breathing upon the nervous system.

Deep breathing improves VNS results!


Epilepsy and anesthesia…

May 22, 2023
2 Comments

Anti-epileptic drugs (AEDs) cause unique considerations for patients with epilepsy because skipping, or even delaying, a single dose, can result in seizures.

Strategies for avoiding or minimizing skipped doses are paramount in the care of patients with epilepsy.


Before you agree to surgery… 

May 18, 2023
16 Comments

How many times have you heard: “Well, it isn’t exactly brain surgery.” Well this time it is.

And it’s your brain.

It’s a scary trip into the unknown. Thoughts are swirling around in your head: What will happen to me? Is this the right thing to do? Is this really the best surgeon for the job? What if it doesn’t work? Maybe I should put it off…

It’s really hard to be prepared for something as radical as brain surgery – either physically or emotionally. That’s why it’s important to gather all the information you can, before hand.

Remember: Knowledge is power.

Here some things to consider and ask your neurologist/neurosurgeon team before surgery.


What’s one of the most wonderful things your mother did for you?

May 12, 2023
5 Comments

For me it was something very simple. She bought me a notebook.

When I was in fifth grade, I got sent home with a note to my parents, accusing me of plagiarism.


Truth or Lies: Epilepsy in Movies and TV

May 9, 2023
3 Comments

Apart from tuberculosis and syphilis, few diseases have been as steeped in myth as epilepsy.

The generalized tonic-clonic seizure has been associated with phenomena ranging from divine powers and possession by spirits to mental and moral depravity.

This has been chronicled and described extensively in fiction and feature films.

They do nothing but reinforce the stigma that is rampant about the condition.

But not always.


« Previous PageNext Page »

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    To receive Epilepsy Talk articles FREE, simply go to the bottom of the right column, enter your email address and click on "Follow"

    Join 3,091 other subscribers
    Follow Epilepsy Talk on WordPress.com