Epilepsy Talk

The Great Debate — Medical Marijuana

October 9, 2018
17 Comments

Even though the cannabis plant has a long history of medicinal use, with evidence dating back to 2,737 BCE, it’s still a subject of hot controversy. 

It appears to be a standing battle between politics and science.

The legality requires proof of medical marijuana’s effectiveness.

Reports of success are anecdotal.

Yet there are no funds for clinical trials and it remains on a back burner for further NIH funding and research.

(Wow. What a surprise!)

Dr. Ben Whalley, who is leading the research at the department of pharmacy at the University of Reading, said: “There was a stigma associated with cannabis that came out from the 60’s and 70’s associated with recreational use, so people have tended not to look at it medicinally as a result.”

But now, some experts are calling for fresh research into the potential of cannabis-like compounds to help alleviate seizures.

Because further evidence has emerged that an ingredient of cannabis could help prevent epileptic seizures.


Fighting Seizures Nutritionally

October 6, 2018
12 Comments

I know from personal experience as a Health & Wellness writer that certain nutrients can help your neuro functions.

But, like anything else, there is no one-size-fits-all solution.

What food combinations that work for one might definitely not work for another.

And it certainly doesn’t take the place of meds.

However, I do believe that although living a healthy lifestyle won’t cure you…it can certainly help you.

So, here’s some information for sensible eating and supplementing your diet.


“Pseudo Seizures” AND Epilepsy – Yes, You CAN Have BOTH!

October 2, 2018
11 Comments

Some know it as non-epileptic seizures (NES), psychogenic non-epileptic seizures  (PNES), or pseudo seizures.

And then there’s epilepsy. Which is what?

What seizures all have in common is that they are usually sudden, short, and cause a change in the person’s awareness of where they are, what they are doing, what they are thinking or what they are feeling.

Some people have more than one type of seizure.

For example, around 15 in every 100 people with non-epileptic seizures (NES) also have epilepsy.


Epilepsy Drug Side-Effects

September 23, 2018
36 Comments

They’re necessary, but not necessarily nice.

And every med has its own side-effects.

Just as different people experience different difficulties.

But here‘s the low-down on the possible side-effects.

I hope you don’t have to suffer any of them. (Or as few as possible.)


AEDs…Surgery…and Alternative Treatments…

September 18, 2018
14 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


Daily, Weekly Seizure Cycles More Common Than Previously Thought

September 14, 2018
20 Comments

Seizures cycles occurred in more than 80% of people with epilepsy, a retrospective analysis found.

These cycles most often were circadian, but also included weekly and longer periods, reported Mark Cook, MD, of the University of Melbourne in Australia, and co-authors in The Lancet Neurology.


Conditions Commonly Misdiagnosed as Epilepsy…

September 11, 2018
8 Comments

A moment of unresponsiveness — the inability to recall what just happened…convulsions or jerking movements…sudden stiffness of the body.

These are classic symptoms of an epilepsy seizure — triggered by abnormal electrical impulses in the brain.

And while these symptoms may indicate epilepsy, other brain abnormalities or injuries could also lead to seizures.

Having a seizure doesn’t automatically mean you have epilepsy.  And without testing, the diagnosis – or misdiagnosis – can be pretty scary.

There are loads of conditions that have symptoms similar to epilepsy.  Here are the most common…


If You DON’T Have Epilepsy, Then WHAT Is It???

September 11, 2018
15 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.

In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy”,  I thought I had it all covered.

But, believe it or not, that was just the tip of the iceberg.

I dug deeper and researched further and here is what I learned about signs and signals which might cause epilepsy, might show the same symptoms of epilepsy, or might be masquerading in their own way as epilepsy…


SUDEP — Who’s at Risk?

August 18, 2018
37 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.


Anti-Epilepsy Drugs Lose Effectiveness Over Time…

August 6, 2018
30 Comments

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. 

But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.

Almost all first, second and third-generation epilepsy drugs lose their efficacy after prolonged treatment.

Perhaps it’s because your metabolism builds up a tolerance to the drug. And ramping up the dosage can work.

Or it may be a functional tolerance where your brain receptors have become resistant to the drug. In that case, a change in medications may help. But whatever the cause, you’re not alone…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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