Epilepsy Talk

Have You Had A Concussion?

March 30, 2014
34 Comments

In a fraction of a second, head trauma can dramatically change your life.

It can be a boink on the head, a fall, sports activities, or a car accident — among many other possibilities.


Where to Go When You Need Help — Directory of Epilepsy Resources

November 21, 2013
6 Comments

Here are some wonderfully useful links I’ve found along the way. Some may be familiar and some may be new to you. If you have any additions or suggestions, please, speak out…


The SmartWatch — A New Type of Seizure Monitor!

November 10, 2013
17 Comments

Imagine a wristwatch-style device that could help allay your major fear. That a dreaded seizure could happen without anybody knowing, no hope of help.

Welcome the The SmartWatch — a motion detecting and alerting wristwatch that can detect seizures and alert caregivers within seven to 10 seconds!


NEW Anti-Epilepsy Drugs

October 20, 2013
16 Comments

As an orphan drug, you can see why epilepsy isn’t way up front in the funding department.

But, miraculously, there are 7 new drugs that have come down the line.

Here’s a brief summary of each…


Schizophrenia and Epilepsy — The Connection

September 20, 2013
13 Comments

There’s always been a suspicion of the possible ties between epilepsy and schizophrenia.

But now, research has shown that schizophrenia and epilepsy are linked in both directions.


IMPORTANT! Rally for Medical Research!

September 10, 2013
4 Comments

NIH funding is in danger and without support its ability to fund important and life-saving research for epilepsy could be delayed.

We cannot afford to reduce medical research funding when there are so many people living with uncontrolled or intractable seizures.

The Epilepsy Foundation is joining in the “Rally for Medical Research” Hill Day on September 18th.


Special Education — Expectations and the Law

September 8, 2013
16 Comments

Special educational ensures that your child needs are met (legally) if they have learning difficulties that need special help at school.

Technically, it’s called a special education provision.

And there may be a special educational needs coordinator (SENCO) at the school who can look at your child’s needs, alongside the school’s governing body (often the local authority’s education department).


Epilepsy and Psychosis – Is It Genetic?

September 6, 2013
6 Comments

Just as epilepsy is called “a storm in the brain,” psychosis might be viewed as “a lightning strike” to the brain.

Both have to do with havoc in the brain, but one’s a neurological issue and the other is a mental illness.

Totally different ballgames, right?

Maybe not, says new research which focuses on the genetic connection.


“Epilepsy Smart” Schools

September 2, 2013
27 Comments

The most important word here is education. Not only for your child but for all those around him/her.

Because without education and awareness, the school experience can be a disaster for your child.


Dravet Syndrome — New Hope Through Research

August 25, 2013
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Severe Myoclonic Epilepsy of Infancy was first described by Dravet in 1978.

In 1992, Dravet and colleagues found at least 172 published cases. Since then there have been numerous new cases.

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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