Epilepsy Talk

The Sacred Disease. A Movie You Can Not Afford to Miss…

November 28, 2010
4 Comments

The Sacred Disease is a movie you can not afford to miss…

Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.


There IS Hope!

November 15, 2010
7 Comments

There IS Hope!

Here is an encouraging letter I received from the Department of Health & Human Services:

Thank you for your personal message regarding the training of law enforcement officers and other public safety personnel who respond to people experiencing epileptic seizures…


Help Remove Barriers for People with Epilepsy!

June 3, 2010
7 Comments

Alert your Governor about an Important Letter
This week, the U.S. Government sent an important letter to every state health department. It stressed the importance of eliminating barriers that prevent people with disabilities from becoming fully integrated into their community…


Prison Abuse

January 25, 2010
4 Comments

This is a story of a staggering atrocity by both police officers and prison officials committed to a person with epilepsy upon arrest. His mother wrote to me here…


Great Epilepsy Resources

September 28, 2009
4 Comments

Below are some helpful epilepsy links — websites for support, awareness and useful information.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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