Epilepsy Talk

Epilepsy Bill Of Rights

October 16, 2023
5 Comments

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…


Anger and Epilepsy: WHY ME? 

October 12, 2023
13 Comments

Suddenly, you’re feeling edgy. Lashing out at loved ones for no reason at all. It’s not anybody’s fault. It’s that old familiar enemy. Epilepsy. Again.

Why me? Why now? It’s not fair.


Laughter IS the best medicine!

October 8, 2023
7 Comments

And, believe it or not, it’s good for your health.

Laughter can even help your EEG results!


“When you’re going through hell, keep on going.”

October 3, 2023
3 Comments

Winston Churchill


Posted in Epilepsy

Whatever Happened to Mitch McConnell?

September 29, 2023
3 Comments

He fell. And had a concussion.

Which technically could have been caused by a TBI, mini stroke, or seizure.

Leading to cognitive damage or an underlying neurological issue.

The Capitol physician deemed him ok to go. Not a neurologist, but a physician.


Hidden Rescue Med Assistance Programs

September 19, 2023
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For many years I thought Patient Assistant Programs were only available to those not covered by insurance or only to children or to those in the hospital.

But, I was wrong.


Whoopee! A new knee!

August 1, 2023
24 Comments

Nothing lasts forever. And it seems my knee is one of those things.

So, I’m scheduled for total knee replacement surgery on Wednesday, August 2nd.


Brag a little! What’s been your greatest success?

July 28, 2023
11 Comments

For me, it’s living.

There was a time when I truly wanted to die.

Life was so out of control and I was so desperate, I saw death as the only way out.

Death was my siren song…whispering to me every day.


Dating disasters…

July 26, 2023
9 Comments

When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was.


Heat is not our friend!

July 23, 2023
9 Comments

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.

An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.

Some examples:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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