Epilepsy Talk

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June 8, 2024
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I never met anyone with epilepsy until I was 29.

And that was a best friend of my husband’s. (Which may explain why Arthur didn’t freak out when I had a seizure on our first date!)

That was it. Beginning and end.


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Your birthday contribution would mean so much…

June 4, 2024
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Almost everybody has a wish for their birthday.

This month I turn 71. And a contribution to the Epilepsy Foundation Eastern PA is my birthday gift wish.


Epilepsy and energy drinks — think before you drink!

May 30, 2024
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It feels good and it tastes good, it’s easy to drink and it gives you that extra jolt of energy. But is it really worth it?

Think of the death of 18-year-old Irish athlete, Ross Cooney, who died within hours after playing a basketball game and consuming four cans of “Red Bull”.


Seizure Service Dogs Directory — National and International

May 27, 2024
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“Owning a dog is not a matter of life and death, it is much more important than that.” — Unknown Author

We love them as they love us.
We are both devoted to each other.

We depend upon them and they seldom falter.

They are our friends, guides and they are our leaders to independence.

Who wouldn’t want a service dog? But how many of us can find one? That’s what this research was all about.


Seizure Alert Dogs

May 26, 2024
4 Comments

I recently met a mother and daughter team who participate in a wonderful organization called Canine Partners for Life.  


What were your most formative moments?

May 24, 2024
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For me, it was three different stages, ages and issues…

1. Growing into my own skin…

Being a pre-teen or a teenager is, to say the least, no picnic. Add the layer of epilepsy on top of it and you’ve got a disaster waiting to happen.


Seizures…memory…depression. YES, they are linked!

May 21, 2024
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At least one third of people with epilepsy also have depression.

Epilepsy can have different effects on memory functions and depression for various reasons.

Because the portion of the brain where memory and emotions are stored — the limbic system — can be disturbed by epileptic seizures.

In fact, memory problems are one of the most reported problems that coincide with epilepsy.


Telemedicine and You…

May 18, 2024
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Basically, the main word here is accessibility.

Because Epilepsy is a long-term condition that requires constant accessibility.

Instead of waiting hours for a 15 minute visit, telemedicine can incorporate immediate concerns, along with consistent management.


Hospitals’ new message for patients: STAY HOME!

May 14, 2024
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If you’re suffering from a life-threatening condition, emergency room triage is no joke.

They didn’t stop to ask me the name of my doctor when I was in a coma. (Drug interaction.)

Or when my elbow was sticking through my skin. (Bad fall.)

But once I was mobile and ready to function on my on cognizance, out I went.


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures? 

May 10, 2024
4 Comments

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

Here’s how it works:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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