Epilepsy Talk

Epilepsy Brought Alive By Three Amazing Talents

June 30, 2011
8 Comments

Maggie Mendus, Tiffany Webb and Terry Tracy all have one thing in common: Epilepsy and a rare, inspiring talent. Through poetry, fiction and film, they take us on a jorney of what it is like to live through seizures with astounding depth and feeling.

Don’t miss any of these three creative break-throughs.


Checking charities and their accountability

May 7, 2011
5 Comments

Since it is so difficult to figure out where our donations are going and we don’t want to give up on giving, I thought I’d tell you about two very reliable sites that can give you the TRUE facts on your chosen charity. They are: The Charity Navigator and Charity Watch — part of the American Institute of Philanthropy.

Both are well-trusted, responsible guides to help you in your contribution decisions. (Fortunately The Epilepsy Foundation is a 3-star charity, according to the Charity Navigator and it’s also ranked as a top-rated charity by Charity Watch.)


Your Child Has Just Been Diagnosed With Epilepsy…

January 23, 2011
8 Comments

The diagnosis comes in. It’s epilepsy.

Your heart drops to the bottom of your stomach. You may panic…or cry…or call in the troops for support.

Whether your child is an infant, toddler, grade schooler, adolescent or young adult, how you behave now will make a world of difference to their future.

Here are some resources to help you help your child…


The Sacred Disease. A Movie You Can Not Afford to Miss…

November 28, 2010
4 Comments

The Sacred Disease is a movie you can not afford to miss…

Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.


American Epilepsy Outreach Foundation | Links

November 14, 2009
5 Comments

I just received an email from the American Epilepsy Outreach Foundation http://epilepsyoutreach.org/9#two with all kinds of wonderfully useful links. So, I thought I’d share them with you. Some may be famaliar, and some quite new…


Epilepsy First Aid

September 8, 2009
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Here are a few tips you can pass on to others on how to respond to a seizure.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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