Epilepsy Talk

BEWARE! AED Safety Risks Withheld

August 18, 2013
23 Comments

A study by Johns Hopkins researchers shows that a fifth of U.S. neurologists appear unaware of serious drug safety risks associated with various anti-epilepsy drugs, potentially jeopardizing the health of patients who could be just as effectively treated with safer alternative medications.

The findings suggest that the U.S. Food and Drug Administration needs a better way to communicate information to specialists about newly discovered safety risks, the researchers say, since the warnings are in many cases not getting through to doctors making important prescribing decisions.


I Am Not a Camel … but I Do Have Epilepsy

February 14, 2013
5 Comments

Here’s an excerpt of a successful woman’s odyssey through the world of epilepsy… It’s riveting.


Epilepsy — Preventing Depression — Project UPLIFT

December 18, 2012
5 Comments

It’s called Project UPLIFT (Using Practice and Learning to Increase Favorable Thoughts). And eureka! It doesn’t include meds…

What’s more, this new study has proven successful in the prevention of depression in people diagnosed with epilepsy…


Only Days Left to Make Epilepsy Awareness a Reality — Take Action!

December 12, 2012
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Only Days Left to Make Epilepsy Awareness a Reality — Take Action!

Please call, email, Facebook, tweet and/or visit Speaker Boehner and Representative Upton. We need to ensure that RAISE is passed by the end of the year.

With 107 cosponsors, House Resolution 298 (the RAISE Resolution) has come a long way, but this important legislation is only a few days away from “dying in committee”. The bill needs to be released from committee before it can be voted on and passed…


When Will YOU Be Eligible For Medicare?

November 29, 2012
6 Comments

Whenever the discussion turns to saving money in Medicare, the idea of raising the eligibility age often comes up…


Three Things You Need To Know About The New Obamacare Rules

November 26, 2012
13 Comments

The Centers for Medicare and Medicaid Services (CMS) and the Department of Health and
Human Services (HHS) have outlined the new proposed rules, which instruct insurers, providers, and governmental institutions on how they must proceed in implementing Obamacare measures — ranging from a ban on discriminating against Americans with pre-existing medical conditions to public wellness initiatives such as coverage for employees’ gym use. Here are the three most important things you need to know about the new rules…


Perampanel — New Hope For Those With Uncontrollable Seizures

November 6, 2012
19 Comments

On October 24, 2012 the FDA approved Perampanel as an adjunct treatment for refractory partial-onset seizures in patients with epilepsy aged 12 years and older. A step forward for us all. Here’s why…


Forgive Me…

October 30, 2012
16 Comments

If I was slow to answer your questions or queries, I’m very sorry. I never meant to let you down.


A Marriage Made in Heaven — The Epilepsy Foundation and epilepsy.com Unite!

October 20, 2012
1 Comment

It’s official. The EFA and epilepsy.com are merging. And you can break out the wedding cake on January 1, 2013 to celebrate!

Once merged, the Epilepsy Therapy Project and the Epilepsy Foundation will focus scientific research and clinical medicine on the most important goal – new therapies, better control and a national call to action on behalf of everyone living with epilepsy…


IMPORTANT NEWS!

September 26, 2012
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IMPORTANT NEWS!

Reminder: Medicare Open Enrollment is October 15th — December 7th.

The EFA encourages everyone on Medicare to compare their benefit options and/or work with family members who are using Medicare to make the best choice for them. The following resources may be helpful to you, your local support group, or family member…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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