Epilepsy Talk

The Stigma of Epilepsy… 

October 15, 2024
8 Comments

“…recently I got a call from an upset mother whose son was not allowed to go to the school prom because ‘he might have a seizure there,’ and from the distraught mother of a 4-year-old who had been expelled from her church-sponsored daycare because ‘we are not equipped to handle epilepsy,’ even though the girl had yet to have a seizure in class!”


A neurologist talks about his own epilepsy…

April 16, 2024
6 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


Why would a psychiatrist be embarrassed? 

February 25, 2024
4 Comments

“I’m a psychiatrist and even I kept my mental health meds a secret.

At work, I know how important these medications are.

But personally? The stigma against them left me feeling ashamed — until now.”


The Isolation of Epilepsy 

November 15, 2023
4 Comments

You’re reluctant to go out.

Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?

What will people do? What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.

So why chance it?


What most offends YOU about how people treat epilepsy?

April 14, 2023
19 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


The Stigma of Epilepsy…

March 5, 2023
10 Comments

The stigma is ancient and it still remains today.

Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.

Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]


A neurologist talks about his own epilepsy…

November 27, 2022
7 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.


Epilepsy in Twitter Times

June 4, 2012
10 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.

A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the twitter community…


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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