Epilepsy Talk

The Isolation of Epilepsy 

November 15, 2023
4 Comments

You’re reluctant to go out.

Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?

What will people do? What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.

So why chance it?

Posted in Epilepsy
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What most offends YOU about how people treat epilepsy?

April 14, 2023
19 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.

Posted in Epilepsy
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Epilepsy in Twitter Times

June 4, 2012
10 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.

A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the twitter community…

Posted in Epilepsy, News
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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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