I remember five jets of water, pummeling me from the shower walls and ceiling.
All of a sudden, a metallic taste in my mouth.
Strange and disgusting.
If you did have the options — without epilepsy haunting you — what would you choose to do?
Reclaim our vote. And pass the word along to others.
In these days of postal problems and uncertainty, the more people who vote, the more votes can be counted.
Including yours.
Posted in
EpilepsyTags:
2020 goals,
ballot,
democracy,
freedom,
mail,
nonprofit,
postal problems,
suppression,
voter suppression,
voter uncertainty,
voters nationwide
When did you find out that you had epilepsy?
How?
What did you do after being diagnosed?
How do you cope with it now?
Posted in
EpilepsyTags:
anger,
believe,
diagnosed,
Dilantin,
Epilepsy,
fail,
ignorance,
pariah,
Phenobarbital,
secret,
story,
succeed
In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…
Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders. Along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.
The controversy about generic drugs continues…
Posted in
Epilepsy,
Medication IssuesTags:
anti-seizure medications,
bioequivalent,
brand name,
concern,
doctors',
FDA,
generic drugs,
insurance companies,
seizure control,
side effects
This is from the NEW York Times, February 14, 2020.
It speaks of the secret methods of billing. Who pays and who does not. (A precious few.)
ADHD is the current term for the neurological condition formerly known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Organic Brain Syndrome, Minimal Brain Dysfunction, and Minimal Brain Damage.
About 5% of children in the general population have ADHD. However, about 30-40% of children with epilepsy may have ADHD or attention problems. Also, ADHD is seen more often in boys than in girls (some medical professionals claim this ratio to be as high 4 to 1).
Posted in
Epilepsy,
Medication Issues,
ResearchTags:
absence seizures,
academic achievement,
ADHD,
attention problems,
behavioral difficulties,
cognitive,
hyperactive disorder,
inattentiveness,
intellectual,
language,
learning difficulties,
memory,
motor,
neuropsychologist,
Ritalin,
spatial,
staring spells
The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.
Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.
Brain stimulation has now been shown to offer significant relief to patients with intractable seizures, for whom drugs and other treatments have not worked.
Posted in
Epilepsy,
ResearchTags:
(RNS),
focal point,
inproved cognition,
intractable seizures,
more effective,
partial-onset seizures,
Responsive Neurostimulation,
reversible,
safety,
VNS
Do any of these sensations sound familiar to you?
Suddenly you’re sweating, flushed, become pale or have goosebumps.
Your stomach feels queasy, like you’re going to puke.
There’s a foreboding or fear that something awful is about to happen.
Posted in
Epilepsy,
ResearchTags:
aura,
deja vu,
distortion,
foreboding,
no seizure,
odd sensation,
perceptions,
simple partial seizure,
spatial,
visual
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