Epilepsy Talk

The First Time…

August 29, 2020
26 Comments

I remember five jets of water, pummeling me from the shower walls and ceiling.

All of a sudden, a metallic taste in my mouth.

Strange and disgusting.


If You Didn’t Have Epilepsy, How Would You Change Your Life?

August 21, 2020
71 Comments

If you did have the options — without epilepsy haunting you — what would you choose to do?


Help Save Our Democracy!

August 17, 2020
19 Comments

Reclaim our vote. And pass the word along to others.

In these days of postal problems and uncertainty, the more people who vote, the more votes can be counted.

Including yours.


What is YOUR story?

August 7, 2020
45 Comments

When did you find out that you had epilepsy?

How?

What did you do after being diagnosed? 

How do you cope with it now?


Epilepsy Related Conditions

July 29, 2020
93 Comments

In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…

Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders. Along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.


Can I Substitute Generic Drugs for My Anti-Seizure Medications?

July 24, 2020
35 Comments

The controversy about generic drugs continues…


Who’s Profiting From Your Outrageous Medical Bills?

July 19, 2020
20 Comments

This is from the NEW York Times, February 14, 2020.

It speaks of the secret methods of billing. Who pays and who does not. (A precious few.)


Is it ADHD…Epilepsy…or Both?

June 30, 2020
8 Comments

ADHD is the current term for the neurological condition formerly known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Organic Brain Syndrome, Minimal Brain Dysfunction, and Minimal Brain Damage.

About 5% of children in the general population have ADHD.  However, about 30-40% of children with epilepsy may have ADHD or attention problems. Also, ADHD is seen more often in boys than in girls (some medical professionals claim this ratio to be as high 4 to 1).


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures |

June 19, 2020
7 Comments

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.

Brain stimulation has now been shown to offer significant relief to patients with intractable seizures, for whom drugs and other treatments have not worked.


Auras without Seizures

June 15, 2020
72 Comments

Do any of these sensations sound familiar to you?

Suddenly you’re sweating, flushed, become pale or have goosebumps.

Your stomach feels queasy, like you’re going to puke.

There’s a foreboding or fear that something awful is about to happen.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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