Epilepsy Talk

The Impatient Patient

November 14, 2025
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Why do they call us “the patient”

We are not patient. We endure.


Death, Depression and AEDs

November 13, 2025
2 Comments

“Suicide Risk from 11 Anti-Epilepsy Drugs,” headlines blared across the country.

But we’re still here.

Was it sensationalism by the journalists, irresponsibility by the pharmaceutical industry or laxness of the FDA?

The answer is none of the above. And, by the way, they forgot to include antidepressants.

At best, I’d call it a misunderstanding.  At worst, I’d call it manipulation.


Memory games to boost your brain…  

November 9, 2025
5 Comments

The problem I had writing this article was that I was having too much fun! I kept on getting detained playing games, but it was worth it. Some I did o.k. on, others I flunked miserably. They’re fun, they’re challenging, and I think you’ll really like them.

Here are just a few examples:


Memory Tips You (Hopefully) Won’t Forget!

November 7, 2025
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I have a confession to make.

I was the queen of “Post-Its”. I had Post-Its on tables, counters, walls, doors. I don’t know how I lived without them.

I guess, in the “old” days, I was the same with lists. Many lists. And way too much Scotch Tape.

Factoid: The man who invented Post-Its was an employee at 3M (also the maker of Scotch Tape) who went to his boss with a bright new idea.

I don’t know if he got a raise, but he gets no royalties. Just my undying admiration and thanks.

Anyway, short of taking stock in 3M, here are some other suggestions…


Purple is the color of…

November 3, 2025
5 Comments

Just for fun, I’ve started a list of “all things purple”.

What are some purple things you can think of?


Epilepsy and memory… 

October 29, 2025
4 Comments

To say that lack of memory is a major worry for those of us with epilepsy is hardly a surprise.

In fact, it’s the number one concern.


Hope for the Future — Gene Therapy

October 26, 2025
2 Comments

Imagine if you had genetic intractable epilepsy and you were able to have it treated by inserting a simple gene into your cells.

Without surgery. Without drugs.

Sound scary? Too futuristic?

Well, that research is here. Now.


A game-changer for neurological conditions!

October 23, 2025
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It might sound high-tech, but for many people living with neurological conditions, infusion therapy has become one of the most promising instruments in their treatment toolbox.


Medical Marijuana — Real Stories from Real People

October 17, 2025
9 Comments

“I have TLE and I use marijuana to help with my seizures. If I feel one coming usually MJ will stop it. Or, if I have a cluster of them, I find that MJ usually will stop them. It overall makes me feel normal and better after having them. But, of course this is not everyone’s experience with it. Just mine!”


If You DON’T Have Epilepsy, Then WHAT Is It??? 

October 17, 2025
6 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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