Epilepsy Talk
WE ARE FAMILY!
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I’m so excited, I just can’t hide it!
Our family has just reached 1,000 members today.
Which is a testament to YOU!
Your compassion, sharing and caring.
The selflessness with which you help others. Your patience and persistence.
All the things I treasure about you as a family.
Exciting news! New pill developed to suppress epilepsy seizures
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Within a decade, people with drug-resistant epilepsy may be able to take a pill to suppress seizures as required, in a similar way to how we take painkillers to relieve a headache.
NEW Anti-Epilepsy Drugs
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As an orphan drug, you can see why epilepsy isn’t way up front in the funding department.
But, miraculously, there are 7 new drugs that have come down the line.
Here’s a brief summary of each…
Tags: Banzel, Onfi, Peganone, Perampanel, Potiga, Sabril, Viibryd
BEWARE! AED Safety Risks Withheld
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A study by Johns Hopkins researchers shows that a fifth of U.S. neurologists appear unaware of serious drug safety risks associated with various anti-epilepsy drugs, potentially jeopardizing the health of patients who could be just as effectively treated with safer alternative medications.
The findings suggest that the U.S. Food and Drug Administration needs a better way to communicate information to specialists about newly discovered safety risks, the researchers say, since the warnings are in many cases not getting through to doctors making important prescribing decisions.
A Little-Known Benefit for Aging Veterans
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Here’s a riddle: When is a government benefit that pays for caregivers, assisted living and a nursing home not a benefit? When hardly any people know they’re entitled to it.
That seems to be the story with a Department of Veterans Affairs benefit called the http://newoldage.blogs.nytimes.com/2012/09/19/few-know-of-benefit-to-help-aging-veterans/ known as A&A, which can cover the costs of caregivers in the home (including sons and daughters who are paid to be caregivers, though not spouses) or be used for assisted living or a nursing home.
The benefit is not insignificant: up to $2,019 monthly for a veteran and spouse, and up to $1,094 for the widow of a veteran.
Surprised that you’ve never heard of it? You’re not alone.
Tags: allowable assets, confusing, entitlement, income limits, low visibility, scams, underused, undisclosed benefits, veterans, well-kept secret
Epilepsy — Preventing Depression — Project UPLIFT
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It’s called Project UPLIFT (Using Practice and Learning to Increase Favorable Thoughts). And eureka! It doesn’t include meds…
What’s more, this new study has proven successful in the prevention of depression in people diagnosed with epilepsy…
Tags: coping, depression, Epilepsy, interventions, mindfulness, positive techniques, prevention, Project UPLIFT, reduce seizures, worry
Only Days Left to Make Epilepsy Awareness a Reality — Take Action!
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Only Days Left to Make Epilepsy Awareness a Reality — Take Action!
Please call, email, Facebook, tweet and/or visit Speaker Boehner and Representative Upton. We need to ensure that RAISE is passed by the end of the year.
With 107 cosponsors, House Resolution 298 (the RAISE Resolution) has come a long way, but this important legislation is only a few days away from “dying in committee”. The bill needs to be released from committee before it can be voted on and passed…
Tags: call, congress, email, epilepsy awareness, Facebook, important legislation, RAISE Resolution, Representative Upton, Speaker Boehner, tweet, visit
Three Things You Need To Know About The New Obamacare Rules
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The Centers for Medicare and Medicaid Services (CMS) and the Department of Health and
Human Services (HHS) have outlined the new proposed rules, which instruct insurers, providers, and governmental institutions on how they must proceed in implementing Obamacare measures — ranging from a ban on discriminating against Americans with pre-existing medical conditions to public wellness initiatives such as coverage for employees’ gym use. Here are the three most important things you need to know about the new rules…
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