Epilepsy Talk

AEDs…Surgery…and Alternative Treatments…

March 21, 2021
6 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


Keppra — What People Are Saying

March 11, 2021
50 Comments

When Keppra was approved as an add-on medicine for partial seizures, including partial seizures with secondary generalization, at the time, it was suggested that Keppra might have a universally positive effect on all seizure types.

That’s all fine and good for researchers who aren’t struggling with epilepsy every day.  But here’s a random sampling of what real people – like you and me – have to say…


“Vaccine Angels” Make it Easier to Find COVID-19 Vaccination Appointments

March 2, 2021
83 Comments

They’re here…they’re there…they’re nowhere.

Anyone stay up to till midnight trying to get a slot on the Rite Aid spot?

Arthur has three times. Yes, hope springs eternal.

Here’s how it works:

Applications for the next day begin at midnight. So, at the opening gong, you get on the phone.

Eureka! there’s a spot available. Fill out the necessary information. Submit it. The slot is gone.

Try tomorrow night sucker.


The Perils of Discontinuing Your Meds

February 21, 2021
36 Comments

One of the most common questions is “when can I stop taking my meds?”

Especially for those whose seizures have been under good control.

It makes sense. Because if you’re doing well, you start to wonder: “why do I need these meds anymore”?


32% of Epilepsy Cases are Secretly Caused by This…

February 16, 2021
29 Comments

Touch your neck, right above your collarbone, and you’ll find a little gland called your thyroid. 

It only weighs an ounce, yet this thyroid’s hormones control your metabolism.

When those hormones are balanced, everything is fine.

But if your thyroid makes just a little less or more than you need…it could cause havoc, both with how you function and the effectiveness of your AEDs.


Brave New Cures for the Future — Epilepsy and Neuroengineering

February 8, 2021
5 Comments

It’s only recently that Neuroengineering first appeared.

Neuroengineering is a discipline at the frontier between neuroscience and engineering.

It encompasses experimental, computational, theoretical, clinical and applied aspects of research areas at the molecular, cellular and systems levels.

The emergence of this new field focuses on a multi-science combination of engineers, neuroscientists and clinicians using their combined knowledge and talent, working co-operatively to address the complexity of the brain and nervous system.


The Trouble with AEDs…

February 2, 2021
17 Comments

At the very best, finding the right anti-epilepsy drug is a crap shoot. There’s always the hope that this one will do it.

Or maybe adjunct therapy will work. Or, sigh, the side-effects derail you and you’re on to the next.

Is asking for seizure control too much?


Popular Painkillers — Depressing News

January 30, 2021
10 Comments

If you thought you were depressed before, wait till you finish this paragraph.

Researchers say popular painkillers could block the effects of antidepressants like Celexa, Zoloft, Paxil, Prozac or Lexapro…

This means YOU or a loved one.


Dilantin — What People Are Saying…

December 9, 2020
65 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.


NEWS FLASH: The UN now says medical weed is a less dangerous drug

December 4, 2020
46 Comments

There’s hope on the horizon.

The UN now says medical weed is a less dangerous drug.

Even though it’s a long way from legalization, there’s hope on the horizon.

A United Nations commission has voted to reclassify cannabis as a less dangerous drug, acknowledging the plant’s medical value and paving the way for further therapeutic use of the drug internationally.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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