Epilepsy Talk

Shit happens…

March 4, 2022
3 Comments

It was a normal day at the ice rink.

My friend and I were speed skating.

Then we started to tease her younger brother.

He simply retaliated by sticking out his foot and tripping us.

Into the boards I went. Head first.


Confessions of 30 Years with Epilepsy… 

March 2, 2022
28 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).


Can You Believe It? 

February 28, 2022
7 Comments

Just when you thought the modern world was becoming enlightened, there are still a whole lot of myths and fears about epilepsy — fueled by ignorance and misinformation.

These fears might sound ridiculous to you…but they’re real for those who don’t know better.


Super Seizure De-Stressor  

February 16, 2022
13 Comments

We all know that stress is a super trigger for seizures. Whether it’s family, friends, frustrations, conflict, work, school, fear, anger, anxiety, depression. The list is almost endless.

While nobody can say there’s a magic formula for de-stressing, you might give Progressive Muscle Relaxation a try. It’s a pretty powerful tool.


Medication Reminders You Won’t Forget… 

February 3, 2022
4 Comments

When I was on vacation, I was so relaxed that I kept on forgetting to take my meds. More than once. So when I got home (when I was less relaxed), I looked into some things that might help.

Because, let’s face it. We all forget to take our meds. One time or another. No matter what we have to take or when we have to take them. No matter how hard we try.


Hidden hospital bill gouging…gone!

January 30, 2022
5 Comments

In April 2017, a man named Drew Calver thought he was dying. A heart attack had pinned him to the floor of his bedroom. His neighbor took him to St. David’s Medical Center in Austin, where he was successfully treated.

Weeks later, he received a bill from the hospital: That’ll be $108,951.31, please. St. David’s was out of network on his insurance, and Aetna had only paid $55,840 of the total $164,941 bill for his treatment. 


Gee. I wish I had said that!

January 25, 2022
1 Comment

1. Give people more than they expect and do it cheerfully.

2.   Marry a man/woman you love to talk to.  As you get older, their conversational skills will be as important as any other.

3.   Don’t believe all you hear.


Art therapy for epilepsy

January 22, 2022
5 Comments

Reach out. Be creative. Feel good about yourself. That’s what art therapy is all about.

The creative process of art can help resolve conflicts, develop interpersonal skills, manage behavior, reduce stress and build the self-image of children, adolescents and adults with epilepsy.

It can help develop artistic expression…build autonomy…empower …build a stability and a sense of self-worth as well as connecting with others in a new and wondrous way.


There’s a hidden artist inside you!

January 12, 2022
4 Comments

Maybe you’re an artist…actor…architect…painter…poet…philosopher…singer…or someone you just don’t know.

Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.


Secrets to Better Care from Your Doctor…

January 9, 2022
2 Comments

When you go to see a doctor, often the visit seems to be over in a flash and you leave wondering exactly what it was the doctor wanted you to do.

Doctors are often quite busy and may not present you with all the necessary information so it is your responsibility to take steps to get the most out of your visit.

If regular visits with your neurologist seem short, and taken up with medical details like seizure control and medication issues, ask in advance for a longer time to be scheduled to deal with other issues that are important to you.

Be prepared…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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