Epilepsy Talk
Confessions of 20 Years with Epilepsy…
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When I was first diagnosed as a teen, no one knew what to do with me.
My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).
Guys never called back for a second date.
The Dilantin made me feel like a zombie…I even went into a coma once…
Anger and Epilepsy: WHY ME?
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Suddenly, you’re feeling edgy. Lashing out at loved ones for no reason at all. It’s not anybody’s fault. It’s that old familiar enemy. Epilepsy. Again.
Why me? Why now? It’s not fair.
What most offends YOU about how people treat epilepsy?
19 Comments
I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.
Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.
Tags: achievement, advocate, behavior, discrimination, Epilepsy, ignorance, misinformation, pariah, seizures, stigma
My mother once told me…
8 Comments
Watch where you’re going.
You’re clumsy.
You’re depressed.
Stop feeling sorry for yourself…
Who was your greatest inspiration?
7 Comments
For me, quite simply, it was my grandfather.
After all, I was a pariah. A leper. (No one would say the “E” word.)
I’d never achieve anything. My life was over.
Even though it had just begun.
Confessions of 30 Years with Epilepsy…
28 Comments
When I was first diagnosed as a teen, no one knew what to do with me.
My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).
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Epilepsy Talk 