Epilepsy Talk

The Promise of the New Year…

December 30, 2020
12 Comments

The new year falls upon us…

With hopes of health, dreams of joy…


Clinical Trials. YES or NO?

February 10, 2011
6 Comments

If I was asked to take part in a clinical trial, I’m not sure what I’d say…

First there is the fear factor. Would I be a guinea pig for something dangerous? Would they take away my medicines? Would it hurt me? Would it change something in me?

I asked those very questions to Patient Advocate David Albaugh at Team Epilepsy. http://www.teamepilepsy.org/

Here’s what he had to say…


The Sacred Disease. A Movie You Can Not Afford to Miss…

November 28, 2010
4 Comments

The Sacred Disease is a movie you can not afford to miss…

Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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