Epilepsy Talk

AEDs…Surgery…and Alternative Treatments…

September 18, 2018
14 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


If You DON’T Have Epilepsy, Then WHAT Is It???

September 11, 2018
15 Comments

You might call them “imitators” of epilepsy, but that’s kind of extreme. You might say “similar” or you might say “confused”, which I think they are.

In a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy”,  I thought I had it all covered.

But, believe it or not, that was just the tip of the iceberg.

I dug deeper and researched further and here is what I learned about signs and signals which might cause epilepsy, might show the same symptoms of epilepsy, or might be masquerading in their own way as epilepsy…


What Most Offends YOU About How People Treat Epilepsy?

September 1, 2018
66 Comments

I call epilepsy the “stealth disease,” because most people don’t actually witness a seizure. Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Bullied Because of Epilepsy…

August 29, 2018
31 Comments

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.


SUDEP — Who’s at Risk?

August 18, 2018
37 Comments

When people with epilepsy are told about Sudden Unexpected Death, they naturally wonder “Will it happen to me?”

But actually, the chances of dying from SUDEP are remote.


Some Stress and Anxiety Solutions…

July 14, 2018
24 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


Epilepsy — Advice and Insights

June 30, 2018
37 Comments

Many of us were diagnosed with epilepsy at a wee age…

Others were completely taken by surprise in their teens or later years…


How Creative Are YOU?

June 21, 2018
14 Comments

There can definitely be a creative side to the electrical mischief that epilepsy produces.  Some types of epilepsy can spark inspiration, enhance creativity and bring out the latent artist in you.  It can be as diverse as literature…poetry…painting…drawing…dramatics…architecture…philosophy…or physics…to name just a few.


Who’s at Fault?

May 29, 2018
21 Comments

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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