Epilepsy Talk

Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Where’s The Funding? Epilepsy As An Orphan

November 25, 2018
17 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 200,000 new cases of epilepsy each year, and a total of more than 3 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Gratitude is the Attitude…

November 21, 2018
16 Comments

Sometimes, I get into a funk so bad that it’s like a black hole. 

Until I remember the safety ladder that I always carry in my pocket.

I think of at least five things I’m grateful for.

Or if I’m down there awhile, I stretch it to ten.

Here are the top five on my gratitude list:


Stevens-Johnson Syndrome — a danger for those on Dilantin or Lamictal

November 19, 2018
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This article is not for those with a weak stomach.  Because Stevens-Johnson Syndrome is an ugly and sometimes deadly disease.

But if you are on Dilantin or Lamictal, I urge you to read this information.

According to the Mayo Clinic: Stevens-Johnson Syndrome is a rare, serious condition, thought to be caused by a disorder of your immune system.


Dilantin — What People Are Saying…

November 13, 2018
23 Comments

When I was first diagnosed with epilepsy back in 1969, the availability of AEDs was limited.

Phenobarbital or Dilantin.

Pick your poison.

I chose Dilantin. It was not a pretty picture.


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures?

November 7, 2018
2 Comments

Antiepileptic drugs (AEDs) are the mainstay of treatment for epilepsy, but seizures continue in one-third of patients despite appropriate AED therapeutic trials.

Even in the current era, the etiology of epilepsy often remains unclear.

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

What is the immune system and what are the types of immune disorders?


What would you do if you knew you couldn’t fail?

November 4, 2018
20 Comments

What have you dreamed — or achieved — beyond your wildest dreams?


Fighting Seizures Nutritionally

October 6, 2018
12 Comments

I know from personal experience as a Health & Wellness writer that certain nutrients can help your neuro functions.

But, like anything else, there is no one-size-fits-all solution.

What food combinations that work for one might definitely not work for another.

And it certainly doesn’t take the place of meds.

However, I do believe that although living a healthy lifestyle won’t cure you…it can certainly help you.

So, here’s some information for sensible eating and supplementing your diet.


“Pseudo Seizures” AND Epilepsy – Yes, You CAN Have BOTH!

October 2, 2018
11 Comments

Some know it as non-epileptic seizures (NES), psychogenic non-epileptic seizures  (PNES), or pseudo seizures.

And then there’s epilepsy. Which is what?

What seizures all have in common is that they are usually sudden, short, and cause a change in the person’s awareness of where they are, what they are doing, what they are thinking or what they are feeling.

Some people have more than one type of seizure.

For example, around 15 in every 100 people with non-epileptic seizures (NES) also have epilepsy.


AEDs…Surgery…and Alternative Treatments…

September 18, 2018
14 Comments

The saying “there’s something for everyone” may be true.

But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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