Epilepsy Talk

Trump Rx — Lower Prescription Drug Prices?

September 30, 2025
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The Trump administration will launch a website allowing consumers to buy prescription drugs directly rather than through insurance…


I Am Not a Camel … but I Do Have Epilepsy

September 30, 2025
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For a long time, I didn’t want to tell anyone in my professional world about this unique feature of my brain. 

On the topics-that-are-fun-to-disclose-in-the-workplace-o-meter, epilepsy ranks somewhere between ‘I’ve been embezzling candy from the vending machine for the past 15 years’ and ‘I am actually a camel.’


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Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures by up to 40% 

September 27, 2025
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“It’s like dousing a spark before it becomes a flame,” said Martha Morrell, Neuropace’s chief medical officer.

The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.


People talk about their out-of-body experiences… 

September 23, 2025
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“My back was on the ceiling and I was looking at my body laying there, and it was very freaky. While out-of-body I was just staring at my nose and freaking out a little but something told me you are gonna be alright.”


New Epilepsy Diagnosis – Now What? 

September 21, 2025
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You’re scared. Who wouldn’t be?

The docs. There are lots of terrific ones.

The tests. They can actually help to correctly diagnose your epilepsy.

I’ll die. Not very likely.

My life is over. No, it’s not, but it will change…


How Music Soothes Your Seizures… 

September 18, 2025
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Music is food for the soul, the mind and the body.

Great music, when carefully selected, can change our moods, energize us, calm us, improve our mental focus, lift us up spiritually, and help us become more healthy.

Not surprisingly, music has also been found to have a profoundly positive effect on people with epilepsy.


You’re a poet and you don’t know it… 

September 15, 2025
12 Comments

Inside of you is something special waiting to break out.

Maybe you’re an artist…actor…architect…painter…poet…
philosopher…singer…or someone you just don’t know.


The surprise of epilepsy as a songwriter loses his music

September 13, 2025
7 Comments

I always quote how music soothes your seizures.

But what about when it stops and the agony begins?


“Pseudo Seizures” AND Epilepsy – Yes, You CAN Have BOTH! 

September 12, 2025
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Some know it as non-epileptic seizures (NES), psychogenic non-epileptic seizures (PNES), or “pseudo seizures”.

And then there’s epilepsy.

Which is what?


Epilepsy Verses “Pseudo Seizures”

September 11, 2025
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Epilepsy is not a dirty word. Neither is “pseudo-seizures.”

But they both coexist, side by side.

One of the most common complications is the misconception that people who suffer from “pseudo seizures” are hypochondriacs, hysterics, or “faking it.”


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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