Epilepsy Talk

Who is Your Personal Hero?

February 7, 2019
30 Comments

For me, it was my Grandfather, who believed in me completely and thought that I could do anything I set out to do.

At the age of 14, I said I wanted to be a writer.

“Fine, he said. You’ll go to the Columbia School of Journalism.” 

(Unfortunately he died long before that and nobody else had any faith in me. They all thought I was “damaged goods.”)


Epilepsy Support Groups

January 28, 2019
10 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful. Unless you live in a metropolitan area.

But, if you do find a support group, you’ll find an amazing wealth of camaraderie, compassion and caring.

Not every group does the same things. Even groups with similar activities may have different results because of the individuals involved…but think of it as a learning and bonding experience.

You’re interacting with people who share a similar illness, but perhaps different solutions. You can share your feelings, fears, concerns and perhaps get answers.

But most importantly, you can join a community of caring and know that you’re not alone.


11 Companies Hiring for Jobs You Can Do at Home

December 12, 2018
4 Comments

These companies have remote jobs that may be great for people with chronic illnesses or disabilities.


Epilepsy and Education…Coming Out Of The Shadows

December 6, 2018
10 Comments

It starts in the playground.  A kid has a seizure and everybody freaks out. 

Nobody knows what to do.  Maybe not even the school nurse. 

Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think:

“I can’t deal with this.”


Gratitude is the Attitude…

November 21, 2018
16 Comments

Sometimes, I get into a funk so bad that it’s like a black hole. 

Until I remember the safety ladder that I always carry in my pocket.

I think of at least five things I’m grateful for.

Or if I’m down there awhile, I stretch it to ten.

Here are the top five on my gratitude list:


Memory games to boost your brain…

October 26, 2018
6 Comments

The problem I had writing this article was that I was having too much fun! I kept on getting detained playing games, but it was worth it. Some I did o.k. on, others I flunked miserably. They’re fun, they’re challenging, and I think you’ll really like them.

(A personal word of advice. Go to Games.com first. You’ll be hooked!)


Memory Tips You (Hopefully) Won’t Forget!

October 24, 2018
16 Comments

I have a confession to make.

I’m the queen of “Post-Its”. I have Post-Its on tables, counters, walls, doors. I don’t know how I lived without them.

I guess, in the “old” days, I was the same with lists. Many lists. And way too much Scotch Tape.

Factoid: The man who invented Post-Its was an employee at 3M (also the maker of Scotch Tape) who went to his boss with a bright new idea. I don’t know if he got a raise, but he gets no royalties. Just my undying admiration and thanks.

Anyway, short of taking stock in 3M, here are some other suggestions…


Epilepsy And Complementary Medicine…

October 18, 2018
19 Comments

Complementary Alternative Medicine (CAM) is just what it sounds like. Something to complement the AED regimen you’re already on. And perhaps take an extra step (with your doctor’s go-ahead) to alleviate seizures.

There are lots of alternatives, so I’ll touch on the most popular ones here. (Somehow, I don’t think you’re going to be turning to stones or amulets for relief!)

Interestingly, The Epilepsy Foundation of Arizona did a survey and it revealed that half of the people with epilepsy had tried CAM at some time for seizure control. Almost half used them for other reasons.

Overall, people found CAM to be generally beneficial to their health. The most helpful were stress reduction, yoga, and botanicals (herbs). Nonetheless, half of the patients taking botanicals had an increase in their seizures.

One third of the patients felt that CAM helped treat their epilepsy better than the AED. However, very few patients considered stopping the AED. Almost all of the patients stated they would feel comfortable informing their physician about CAM use.

“Modern medical therapy often fails, yet modern medical therapy exists because complementary and alternative medicine often fails. Both sides have to recognize each other.”  Dr. Orrin Devinsky


Fighting Seizures Nutritionally

October 6, 2018
12 Comments

I know from personal experience as a Health & Wellness writer that certain nutrients can help your neuro functions.

But, like anything else, there is no one-size-fits-all solution.

What food combinations that work for one might definitely not work for another.

And it certainly doesn’t take the place of meds.

However, I do believe that although living a healthy lifestyle won’t cure you…it can certainly help you.

So, here’s some information for sensible eating and supplementing your diet.


3 Revolutionary Epilepsy Watches!

September 13, 2018
11 Comments

They’re, attractive, efficient and a boon to the monitor market.

Meet the Smart Watches…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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