Epilepsy Talk
Where’s the funding? Epilepsy as an orphan.
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Here are the facts, unhappy though they may be…
Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occur more frequently.
Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).
AEDs…Surgery…and Alternative Treatments…
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The saying “there’s something for everyone” may be true.
But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.
Tags: epilepsy alternatives to surgery, epilepsy surgery, health, mental health, neuroscience, science, wellness
Three Anti-Seizure Diets That Could Change Your Life…
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Just when you feel that all is lost, and you’re about to give up on your meds, there is another option. (In fact, there are three!)
They may not beat your epilepsy (although some people say they do!)
But they can help reduce your seizures and the amounts of medication needed.
Tags: Ketogenic Diet, ketones, seizure savers, anti-seizure diets, modified Atkins Diet (MAD), G.U.A.R.D. Diet
Death, Depression and AEDs
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“Suicide Risk from 11 Anti-Epilepsy Drugs,” headlines blared across the country.
But we’re still here.
Was it sensationalism by the journalists, irresponsibility by the pharmaceutical industry or laxness of the FDA?
The answer is none of the above. And, by the way, they forgot to include antidepressants.
At best, I’d call it a misunderstanding. At worst, I’d call it manipulation.
Tags: anti-epilepsy drugs, antidepressants, depakote, depression, depression-anxiety-suicidal behavior, Felbatol, Gabitril, Keppra, Lamictal, Lyrica, Neurontin, Tegretol, Topamax, Trileptal, Zonegran
Epilepsy and memory…
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To say that lack of memory is a major worry for those of us with epilepsy is hardly a surprise.
In fact, it’s the number one concern.
Hope for the Future — Gene Therapy
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Imagine if you had genetic intractable epilepsy and you were able to have it treated by inserting a simple gene into your cells.
Without surgery. Without drugs.
Sound scary? Too futuristic?
Well, that research is here. Now.
Tags: diseases without cure, Gene Therapy, genetic epilepsy, intractable
A game-changer for neurological conditions!
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It might sound high-tech, but for many people living with neurological conditions, infusion therapy has become one of the most promising instruments in their treatment toolbox.
Zinc can help you think!
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Unless you’re at risk for a zinc deficiency, you likely haven’t given much thought to your zinc intake.
An Earbud to Predict Seizures?
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Imagine a tiny, unobtrusive brain monitor — like an earbud or a hearing aid — that could read brainwaves through your ear.
Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures by up to 40%
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“It’s like dousing a spark before it becomes a flame,” said Martha Morrell, Neuropace’s chief medical officer.
The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.
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Epilepsy Talk 