Epilepsy Talk

Combined Meds — What They Are Doing to Your Body

January 27, 2023
7 Comments

For many of us, monotherapy just doesn’t work.

However adjunct therapy has its dangers.

For example, some seizure medicines can lower or raise the levels of other types of medicines in your blood.

Some combinations cause the levels of both medications to fall.

Some cause one level to fall and one level to rise.

And some cause unpredictable side-effects.

So I hunkered down to discover the unhappy marriages between anti-seizure meds.


In case of emergency — new solutions

January 24, 2023
6 Comments

Here are some methods to stop a seizure in its tracks. Or shorten one.

And help relieve you of the dreaded after-effects.

Possibilities you might not have known about…especially the new nasal sprays.


MS or Epilepsy?

January 19, 2023
2 Comments

Recently a woman wrote to me telling about the awful diagnostic disaster that she had been through.

In her words: “It took 3 years, 3 primary doctors, and 7 neurologists to diagnose me.

I told everyone that ‘it feels like my brain is shaking in my head.”

If they had listened to me the first time and had done a simple EEG, it would’ve saved us and the insurance company a lot of money!”


Epilepsy and sleep apnea — a dangerous duo

January 10, 2023
5 Comments

Almost a third of people with epilepsy may suffer with undiagnosed sleep apnea, a sleep disorder which is dangerous because of  the possible serious consequences.

Basically (as you probably already know), sleep apnea is characterized by abnormal pauses in breathing or instances of abnormally low breathing during sleep.

Each pause in breathing, called an apnea, can last from at least ten seconds to minutes, and may occur 5 to 30 times or more an hour, causing partial airway obstruction.

As sleep deepens, your airway becomes blocked.


Wishing you a blessed Christmas…

December 23, 2022
4 Comments

I wish you the gift of health…

I wish you the gift of happiness…


Posted in Epilepsy
Tags: , ,

I’m so sorry…

December 16, 2022
2 Comments

There are many ways that your medical care can go wrong. From diagnosis to treatment.

Has any of these things happened to you?

What was the outcome?


Prevent medication changes…

December 3, 2022
6 Comments

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor.

You might want to make a copy of it for your files.


Mail-Order Meds — Savings and Service

November 20, 2022
6 Comments

For some people, accessing the pharmacy remains one of the biggest barriers to retrieving prescriptions.

A lack of social support, time constraints and limited access to convenient transportation are commonly cited as reasons users cannot get their medication, according to the Centers for Disease Control and Prevention.

But it’s not just patients who have difficulty getting to the pharmacy who benefit from mail-order pharmacies: These programs offer flexibility, time and cost-savings to all enrolled.


Twitter is not our friend.

November 8, 2022
6 Comments

And the misconceptions and stigma of epilepsy live on.

A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the Twitter community.


The deadly drug shortage — an escalating crisis

October 29, 2022
1 Comment

It’s not just “what if”. The drug shortage has become so severe that you can even go to an index to find your drug and its probable shortage.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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