Epilepsy Talk

MS or Epilepsy?

January 19, 2023
2 Comments

Recently a woman wrote to me telling about the awful diagnostic disaster that she had been through.

In her words: “It took 3 years, 3 primary doctors, and 7 neurologists to diagnose me.

I told everyone that ‘it feels like my brain is shaking in my head.”

If they had listened to me the first time and had done a simple EEG, it would’ve saved us and the insurance company a lot of money!”


MS or Epilepsy?

January 20, 2012
6 Comments

Recently a woman wrote to me telling about the awful diagnostic disaster that she had been through.

In her words: “It took 3 years, 3 primary doctors, and 7 neurologists to diagnose me.

I told everyone that ‘it feels like my brain is shaking in my head.’

If they had listened to me the first time and had done a simple EEG, it would’ve saved us and the insurance company a lot of money!

I was misdiagnosed with MS after 4 MRIs. We had 3 trips to the ER. A lot of blood work. And on and on…”


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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