Epilepsy Talk

What were your most formative moments?

May 24, 2024
4 Comments

For me, it was three different stages, ages and issues…

1. Growing into my own skin…

Being a pre-teen or a teenager is, to say the least, no picnic. Add the layer of epilepsy on top of it and you’ve got a disaster waiting to happen.


Seizures…memory…depression. YES, they are linked!

May 21, 2024
12 Comments

At least one third of people with epilepsy also have depression.

Epilepsy can have different effects on memory functions and depression for various reasons.

Because the portion of the brain where memory and emotions are stored — the limbic system — can be disturbed by epileptic seizures.

In fact, memory problems are one of the most reported problems that coincide with epilepsy.


Telemedicine and You…

May 18, 2024
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Basically, the main word here is accessibility.

Because Epilepsy is a long-term condition that requires constant accessibility.

Instead of waiting hours for a 15 minute visit, telemedicine can incorporate immediate concerns, along with consistent management.


Hospitals’ new message for patients: STAY HOME!

May 14, 2024
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If you’re suffering from a life-threatening condition, emergency room triage is no joke.

They didn’t stop to ask me the name of my doctor when I was in a coma. (Drug interaction.)

Or when my elbow was sticking through my skin. (Bad fall.)

But once I was mobile and ready to function on my on cognizance, out I went.


Autoimmune Epilepsy — Cause of Previously Unexplained Seizures? 

May 10, 2024
4 Comments

Some patients with unexplained partial seizures which are medication resistant may have “autoimmune epilepsy” — epilepsy characterized by autoimmune antibodies.

Although autoimmune epilepsy is still rare, it’s become an increasingly recognized cause of epilepsy, which might have been previously thought to be of unknown cause.

Here’s how it works:


Confessions of 20 Years with Epilepsy… 

May 7, 2024
12 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah. (Which didn’t make me feel warm and fuzzy either).

Guys never called back for a second date.

The Dilantin made me feel like a zombie…I even went into a coma once…


Who goes to Florida in May?

May 2, 2024
3 Comments

Me.

Certainly not for the heat and humidity, but to see my my beloved niece.


Posted in Epilepsy
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If You Didn’t Have Epilepsy, How Would You Change Your Life? 

April 30, 2024
2 Comments

I have to admit, I’d still be a writer. Writing is my passion, it’s what gets me up in the morning and I couldn’t imagine living without it.

Yes, sometimes I can’t find the keyboard, sometimes I can’t think straight and sometimes, I can’t concentrate.


Return from the edge…

April 27, 2024
6 Comments

I almost died.

For a while I couldn’t even read.

My brain needed rebooting.

They told me my heart had stopped.

I was lucky to be alive.


BEWARE! AED Safety Risks Withheld

April 22, 2024
3 Comments

A study by Johns Hopkins researchers shows that a fifth of U.S. neurologists appear unaware of serious drug safety risks associated with various anti-epilepsy drugs, potentially jeopardizing the health of patients who could be just as effectively treated with safer alternative medications.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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